We'll all be 'with' you, Barney and waiting to see how you are. Please, all of you? There is a little girl I watched every day that I drove to work since she lived on the main street so I got to see her grow to the age of about 8 and then they moved and I got the TM. Just yesterday we got word that she was hit with TM, also. I don't know any details but I am asking for thoughts and prayers for her and her family. Jeanne
-------Original Message------- From: Butcher, Bernie (S&FS) Date: 7/16/2009 2:15:58 PM To: Robert Pall; [email protected] Subject: RE: [TMIC] Medications Hi Rob do you take Baclofen? Next week I am going in the hospital for a spinal tap trial before I get a Baclofen pump installed. I am wary about the whole thing Barney From: Robert Pall [mailto:[email protected]] Sent: Thursday, July 16, 2009 2:40 PM To: [email protected] Subject: [TMIC] Medications I mentioned previously that I visited Dr. Kerr on 7/1/09 and we decided to adjust my meds. Presently for the most part I take 2 meds for the banding, pins & needles and numbness. They are 4-Aminopyridine and Lyrica. I was taking the 4-aminopyridine (a Potassium channel blocker) twice a day (20 mgs each) I have been taking this medicine for approx. 8 years ..2 weeks ago I cut my dosage in half and starting tomorrow I will cease taking this med so far I have not noticed any changes resulting in the lower dose and I will keep you informed as to any changes I experience going off this med completely. I also take 150 mg of Lyrica 3x per day. Starting today I will cut this down to twice a day for 2 weeks and then once a day for 2 weeks before stopping it altogether. Hopefully I will notice little or no change getting off this medication which I have been on for more than 4 years. Assuming no problems getting off the Lyrica..Dr. Kerr will prescribe a new med for the banding (don't ask me the name I promise to let you know) he also said he could prescribe a new med to help with my constant fatigue (again don't ask me the name). As per his advice I am now swimming for an hour at least 3 times a week..it is not doing much for the TM but it is getting my body in better shape. Having had TM for almost 12 years my dreams of a cure seem more and more distant..so I therefore vow to try and keep my body as healthy as possible and deal with the pain and discomfort as much as medicine can help me. I will keep the group informed as to the weaning off of my current meds and any new meds I begin to take! All the best! Rob in New Jersey
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