I had my Baclofen trial on Wednesday, and I have to say it was not a pleasant experience. The spinal tap was quite painful, and after an hour, They had me walking with walker OK, but an hour later, I could hardly stand – after that, all I could do is stay in bed in the hospital. No spasms, but I did get leg cramps. They got me into the car at the end of the day like a 190 lb, sack of potatoes. When I got home, my brother had to do the same, and also got me into bed. The next day, which they said I would b e back to normal, I wasn’t. I could stand & take a few steps, but on my way to the bathroom, my legs gave out & I fell. Today, Friday, I am back to normal, spasms & all.
This whole ordeal has gotten me down on Baclofen and the pump idea. Bernie ________________________________ From: Janice [mailto:[email protected]] Sent: Monday, July 20, 2009 7:36 PM To: lynne myers; tmic Subject: Re: [TMIC] Medications Lynne, Mine were almost that bad at the beginning. The baclofen really saved my sanity! Janice ----- Original Message ----- From: lynne myers <mailto:[email protected]> To: tmic <mailto:[email protected]> Sent: Monday, July 20, 2009 7:27 AM Subject: Re: [TMIC] Medications My spasms are worse the lower in my body you go. Lower part of legs give me the most problems. They used to be so bad my husband would tell me it looked like I was trying to ride a bicycle. A couple of times when I was laying on the sofa they actually flipped me off onto the floor. Muscles in legs use to always be reall tight all the time too, so much so that when they would try to test my reflexes nothing moved. Now things have gotten much better, I still have spasms off and on all day (worse when I have been overdoing it) but not nearly as severe when they occur. Yes they have always been worse at night or when I try to lay down to relax. Lynne --- On Sun, 7/19/09, Janice <[email protected]> wrote: From: Janice <[email protected]> Subject: Re: [TMIC] Medications To: "lynne myers" <[email protected]>, "tmic" <[email protected]> Date: Sunday, July 19, 2009, 11:31 PM What are your spasms like? Are they mostly at nite? Also, is it located from bottom of feet to hip? Janice ----- Original Message ----- From: lynne myers <http://us.mc534.mail.yahoo.com/mc/[email protected]> To: Janice <http://us.mc534.mail.yahoo.com/mc/[email protected]> ; tmic <http://us.mc534.mail.yahoo.com/mc/[email protected]> Sent: Friday, July 17, 2009 6:51 AM Subject: Re: [TMIC] Medications The pump is for the spasms. It works the same as oral Baclofen but uses much less medication to get the same results. The actual pump is inserted just above and to the left side of my belly button. Then the tubing runs from there around my left side and into the lower part of my spinal column. The pump is about 4" across and sticks out about an inch and a half. Its not really noticable under looser fitting tops, but real noticable in the summer, especially in my bathing suit. No more clingy fabrics for me lol. Lynne --- On Thu, 7/16/09, Janice <[email protected]> wrote: From: Janice <[email protected]> Subject: Re: [TMIC] Medications To: "lynne myers" <[email protected]>, " Bernie (S&FS)Butcher" <[email protected]>, "tmic" <[email protected]> Date: Thursday, July 16, 2009, 11:45 PM Is the Baclofen pump you are using for pain or spasms, etc.? Also, where is it inserted? Janice
