Bernie, I have only had the baclofen in pill form. I wonder what that would
do for you? I am so sorry this happened.
Janice
----- Original Message -----
From: Catherine
To: Butcher, Bernie (S&FS) ; Transverse Mylitis Group
Sent: Friday, July 24, 2009 11:57 AM
Subject: Re: [TMIC] Medications
Bernie,
I am sorry you had such an unfornutnate experience. I hope
you did not hurt yourself further when you fell. Take care.
Catherine
________________________________
From: "Butcher, Bernie (S&FS)"
<[email protected]>
To: Janice <[email protected]>; lynne myers
<[email protected]>; tmic <[email protected]>
Sent: Friday, July 24, 2009 9:15:23 AM
Subject: RE: [TMIC] Medications
I had my Baclofen trial on Wednesday, and I have to say
it was not a pleasant experience. The spinal tap was quite painful, and after
an hour, They had me walking with walker OK, but an hour later, I could hardly
stand – after that, all I could do is stay in bed in the hospital. No spasms,
but I did get leg cramps. They got me into the car at the end of the day like a
190 lb, sack of potatoes. When I got home, my brother had to do the same, and
also got me into bed. The next day, which they said I would b e back to normal,
I wasn’t. I could stand & take a few steps, but on my way to the bathroom, my
legs gave out & I fell. Today, Friday, I am back to normal, spasms & all.
This whole ordeal has gotten me down on Baclofen and the
pump idea.
Bernie
________________________________
From:Janice [mailto:[email protected]]
Sent: Monday, July 20, 2009 7:36 PM
To: lynne myers; tmic
Subject: Re: [TMIC] Medications
Lynne,
Mine were almost that bad at the beginning. The baclofen
really saved my sanity!
Janice
----- Original Message -----
>From:lynne myers
>To:tmic
>Sent:Monday, July 20, 2009 7:27 AM
>Subject:Re: [TMIC] Medications
>
>My spasms are worse the lower in my body you go. Lower
part of legs give me the most problems. They used to be so bad my husband
would tell me it looked like I was trying to ride a bicycle. A couple of times
when I was laying on the sofa they actually flipped me off onto the floor.
Muscles in legs use to always be reall tight all the time too, so much so that
when they would try to test my reflexes nothing moved. Now things have gotten
much better, I still have spasms off and on all day (worse when I have been
overdoing it) but not nearly as severe when they occur. Yes they have always
been worse at night or when I try to lay down to relax.
>Lynne
>
>--- On Sun, 7/19/09, Janice <[email protected]> wrote:
>
>>From: Janice <[email protected]>
>>Subject: Re: [TMIC] Medications
>>To: "lynne myers" <[email protected]>, "tmic"
<[email protected]>
>>Date: Sunday, July 19, 2009, 11:31 PM
>>
>>What are your spasms like? Are they mostly at nite?
Also, is it located from bottom of feet to hip? Janice
>>----- Original Message -----
>>>From:lynne myers
>>>To:Janice ; tmic
>>>Sent:Friday, July 17, 2009 6:51 AM
>>>Subject:Re: [TMIC] Medications
>>>
>>>The pump is for the spasms. It works the same as oral
Baclofen but uses much less medication to get the same results.
>>>
>>>The actual pump is inserted just above and to the left
side of my belly button. Then the tubing runs from there around my left side
and into the lower part of my spinal column. The pump is about 4" across and
sticks out about an inch and a half. Its not really noticable under looser
fitting tops, but real noticable in the summer, especially in my bathing suit.
No more clingy fabrics for me lol.
>>>
>>>Lynne
>>>
>>>--- On Thu, 7/16/09, Janice <[email protected]>
wrote:
>>>
>>>>From: Janice <[email protected]>
>>>>Subject: Re: [TMIC] Medications
>>>>To: "lynne myers" <[email protected]>, " Bernie
(S&FS)Butcher" <[email protected]>, "tmic" <[email protected]>
>>>>Date: Thursday, July 16, 2009, 11:45 PM
>>>>
>>>>Is the Baclofen pump you are using for pain or spasms,
etc.? Also, where is it inserted? Janice
>>>>
>
