Bernie,
Am really glad you went with the baclofen pills. I think you will really be
helped. Keep us posted on progress.
Janice
----- Original Message -----
From: Jan Hargrove
To: Janice ; lynne myers ; tmic ; Bernie (S&FS)Butcher
Sent: Monday, July 27, 2009 11:05 AM
Subject: RE: [TMIC] Medications
Bernie,
I think you've made the best decision, at least you're thinking about
the "possibilities"
that might happen down the road with the pump......I never wanted to
try the pump just from the discussions on here in the last 13 years. Spasms are
a nasty reality for many
of us, but I think the lesser of the evils that you had with your
recent 'experience'!
Of course, who knows what's right,I just think you're doing the best
for yourself 'cause
your choice is the one I would make!! ;)
Glad the pills are helping!
jan
--- On Mon, 7/27/09, Butcher, Bernie (S&FS)
<[email protected]> wrote:
Hi Jan - what I am going to do is try the baclofen pills again. I am
going to work my way up & hopefully find a dose that helps me, I don't want to
get the pump. First, it's surgery, to get the thing in (scary!), and, once it's
in, & I'm having trouble, I'll be stuck with it. Since Friday, I'm taking 15mg,
with no problems (and spasms are not too bad!). I'm going to stay at 15 for
another week.
BERNARD BUTCHER
----------------------------------------------------------------------
From: Jan Hargrove [mailto:[email protected]]
Sent: Friday, July 24, 2009 12:25 PM
To: Janice; lynne myers; tmic; Butcher, Bernie (S&FS)
Subject: RE: [TMIC] Medications
Sorry about your rotten experience...........guess you got your
answer as to whether you want the implant? Hope you're better soon!! janh
--- On Fri, 7/24/09, Butcher, Bernie (S&FS)
<[email protected]> wrote:
I had my Baclofen trial on Wednesday, and I have to say it
was not a pleasant experience. The spinal tap was quite painful, and after an
hour, They had me walking with walker OK, but an hour later, I could hardly
stand – after that, all I could do is stay in bed in the hospital. No spasms,
but I did get leg cramps. They got me into the car at the end of the day like a
190 lb, sack of potatoes. When I got home, my brother had to do the same, and
also got me into bed. The next day, which they said I would b e back to normal,
I wasn’t. I could stand & take a few steps, but on my way to the bathroom, my
legs gave out & I fell. Today, Friday, I am back to normal, spasms & all.
This whole ordeal has gotten me down on Baclofen and the
pump idea.
Bernie
--------------------------------------------------------------
From: Janice [mailto:[email protected]]
Sent: Monday, July 20, 2009 7:36 PM
To: lynne myers; tmic
Subject: Re: [TMIC] Medications
Lynne,
Mine were almost that bad at the beginning. The baclofen
really saved my sanity!
Janice
----- Original Message -----
From: lynne myers
To: tmic
Sent: Monday, July 20, 2009 7:27 AM
Subject: Re: [TMIC] Medications
My spasms are worse the lower in my body you go.
Lower part of legs give me the most problems. They used to be so bad my
husband would tell me it looked like I was trying to ride a bicycle. A couple
of times when I was laying on the sofa they actually flipped me off onto the
floor. Muscles in legs use to always be reall tight all the time too, so much
so that when they would try to test my reflexes nothing moved. Now things have
gotten much better, I still have spasms off and on all day (worse when I have
been overdoing it) but not nearly as severe when they occur. Yes they have
always been worse at night or when I try to lay down to relax.
Lynne
--- On Sun, 7/19/09, Janice <[email protected]>
wrote:
From: Janice <[email protected]>
Subject: Re: [TMIC] Medications
To: "lynne myers" <[email protected]>, "tmic"
<[email protected]>
Date: Sunday, July 19, 2009, 11:31 PM
What are your spasms like? Are they mostly at
nite? Also, is it located from bottom of feet to hip? Janice
----- Original Message -----
From: lynne myers
To: Janice ; tmic
Sent: Friday, July 17, 2009 6:51 AM
Subject: Re: [TMIC] Medications
The pump is for the spasms. It works the same
as oral Baclofen but uses much less medication to get the same results.
The actual pump is inserted just above and to
the left side of my belly button. Then the tubing runs from there around my
left side and into the lower part of my spinal column. The pump is about 4"
across and sticks out about an inch and a half. Its not really noticable under
looser fitting tops, but real noticable in the summer, especially in my bathing
suit. No more clingy fabrics for me lol.
Lynne
--- On Thu, 7/16/09, Janice
<[email protected]> wrote:
From: Janice <[email protected]>
Subject: Re: [TMIC] Medications
To: "lynne myers" <[email protected]>, "
Bernie (S&FS)Butcher" <[email protected]>, "tmic"
<[email protected]>
Date: Thursday, July 16, 2009, 11:45 PM
Is the Baclofen pump you are using for pain or
spasms, etc.? Also, where is it inserted? Janice
