No, I didn't get hurt, I went down slowly on my walker. Then my neighbor came over & got me into my wheelchair. BERNARD BUTCHER
________________________________ From: Catherine [mailto:[email protected]] Sent: Friday, July 24, 2009 12:58 PM To: Butcher, Bernie (S&FS); Transverse Mylitis Group Subject: Re: [TMIC] Medications Bernie, I am sorry you had such an unfornutnate experience. I hope you did not hurt yourself further when you fell. Take care. Catherine ________________________________ From: "Butcher, Bernie (S&FS)" <[email protected]> To: Janice <[email protected]>; lynne myers <[email protected]>; tmic <[email protected]> Sent: Friday, July 24, 2009 9:15:23 AM Subject: RE: [TMIC] Medications I had my Baclofen trial on Wednesday, and I have to say it was not a pleasant experience. The spinal tap was quite painful, and after an hour, They had me walking with walker OK, but an hour later, I could hardly stand – after that, all I could do is stay in bed in the hospital. No spasms, but I did get leg cramps. They got me into the car at the end of the day like a 190 lb, sack of potatoes. When I got home, my brother had to do the same, and also got me into bed. The next day, which they said I would b e back to normal, I wasn’t. I could stand & take a few steps, but on my way to the bathroom, my legs gave out & I fell. Today, Friday, I am back to normal, spasms & all. This whole ordeal has gotten me down on Baclofen and the pump idea. Bernie ________________________________ From:Janice [mailto:[email protected]] Sent: Monday, July 20, 2009 7:36 PM To: lynne myers; tmic Subject: Re: [TMIC] Medications Lynne, Mine were almost that bad at the beginning. The baclofen really saved my sanity! Janice ----- Original Message ----- >From:lynne myers >To:tmic >Sent:Monday, July 20, 2009 7:27 AM >Subject:Re: [TMIC] Medications > >My spasms are worse the lower in my body you go. Lower part of legs give me >the most problems. They used to be so bad my husband would tell me it looked >like I was trying to ride a bicycle. A couple of times when I was laying on >the sofa they actually flipped me off onto the floor. Muscles in legs use to >always be reall tight all the time too, so much so that when they would try to >test my reflexes nothing moved. Now things have gotten much better, I still >have spasms off and on all day (worse when I have been overdoing it) but not >nearly as severe when they occur. Yes they have always been worse at night or >when I try to lay down to relax. >Lynne > >--- On Sun, 7/19/09, Janice <[email protected]> wrote: > >>From: Janice <[email protected]> >>Subject: Re: [TMIC] Medications >>To: "lynne myers" <[email protected]>, "tmic" <[email protected]> >>Date: Sunday, July 19, 2009, 11:31 PM >> >>What are your spasms like? Are they mostly at nite? Also, is it >>located from bottom of feet to hip? Janice >>----- Original Message ----- >>>From:lynne myers >>>To:Janice ; tmic >>>Sent:Friday, July 17, 2009 6:51 AM >>>Subject:Re: [TMIC] Medications >>> >>>The pump is for the spasms. It works the same as oral Baclofen but uses >>>much less medication to get the same results. >>> >>>The actual pump is inserted just above and to the left side of my belly >>>button. Then the tubing runs from there around my left side and into the >>>lower part of my spinal column. The pump is about 4" across and sticks out >>>about an inch and a half. Its not really noticable under looser fitting >>>tops, but real noticable in the summer, especially in my bathing suit. No >>>more clingy fabrics for me lol. >>> >>>Lynne >>> >>>--- On Thu, 7/16/09, Janice <[email protected]> wrote: >>> >>>>From: Janice <[email protected]> >>>>Subject: Re: [TMIC] Medications >>>>To: "lynne myers" <[email protected]>, " Bernie (S&FS)Butcher" >>>><[email protected]>, "tmic" <[email protected]> >>>>Date: Thursday, July 16, 2009, 11:45 PM >>>> >>>>Is the Baclofen pump you are using for pain or spasms, etc.? Also, >>>>where is it inserted? Janice >>>> >
