I'm Jim and I've only had TM for 6 months. I'm 63 and have led a very active life here in Hawaii. In a two day period in March I became paralyzed from the waist down. No bladder or bowel function. A week of Solu-medrol and then a week of IVIG treatment that cost 27,000 and no results. Neither my wife or I are able to work (she cares for me) and we are going into bankruptcy. We've lost the house and live with my son. I cry for my wife who has to suffer with me. I pray and pray for relief. I have almost committed suicide several times but leaving my wife that way has held me together. I can not imagine living like this for 10 or more years. Kudos to all of you who have managed some level of happiness.
On Mon, Sep 27, 2010 at 12:41 PM, <[email protected]> wrote: > Yes we all have days like this... my 6 year "anniversay" is comming up > oct 6th and it's hard not to dwell on how my life changed so much within a > few hours... to go from being so active to tired just getting out of bed and > try to explain to others how I feel. my TM family gets me thru so much! > > > ----- Original Message ----- > From: "john snodgrass" <[email protected]> > To: [email protected] > Cc: "transverse myelitis" <[email protected]> > Sent: Monday, September 27, 2010 5:56:11 PM > Subject: RE: [TMIC] It's my birthday > > Rob is right. > yesterday i had a terrible day. wanted to go visit my 79 year old dad and > couldn't. > chair to bed all day! > > there was an accident below my home Saturday evening and i wanted to hurry > to see if i could help or was it family or what and i almost fell down a lot > of times! > if i wanted to be sure on my feet i should use a stick or a walker but i am > hard headed and wont s i look like a drunk man walking. > > today was a little better but still a lot of pain. > > I am @ 2.5 years into this thing and there was one day when i was so > frustrated that i cried. > > sometimes you have to if you have to. > > i think self pity is natural when it comes to health problems. > > anyone who would cast a bad light on someone for that just may find > themselves in a worse condition. > > not long after I had my virus in my spine i found out that one of my best > friends had a virus that went to his heart. > > he is still functioning who who woulda thunk it! > > sometimes i just want to walk right out of this body. > > then i think of my loved ones and friends,and of course you folks that > fight this same fight with me. > > keep on the firing line. > > > > tomorrow is a better day. > > > --- On *Mon, 9/27/10, [email protected] <[email protected]>* wrote: > > > From: [email protected] <[email protected]> > Subject: RE: [TMIC] It's my birthday > To: "Robert Pall" <[email protected]> > Cc: [email protected] > Date: Monday, September 27, 2010, 5:39 PM > > Rob, > I think everyone has days that tm is overwhelming. There have been > several days lately that I've cried about all that I lost when tm struck me > on 8/13/95. Except for those here on the list,nobody "gets it" and how hard > just getting out of bed and functioning every day is. > I thank all of you for being here. > Yes Rob,tomorrow will be a better day! > Cheryl in Easthampton,MA. > > > --- On *Mon, 9/27/10, Robert Pall <[email protected]>* wrote: > > > From: Robert Pall <[email protected]> > Subject: RE: [TMIC] It's my birthday > To: [email protected], [email protected] > Date: Monday, September 27, 2010, 3:21 PM > > What a coincidence ...today is my Bar Mitzvah ...it is exactly 13 years > for me today...not sure how to celebrate. I came down with TM one week after > my 50th birthday....therefore when i had my big 10 year mark it was the > first time I allowed myself self pity...I broke down for a day or two and > just felt so much self pity......and then i realized how many wonderful > things I have and I went back to my normally positive attitude....but today > after 13 years I just think when I go home I will have a good cry > & allow myself tonight to feel sorry for myself. Tomorrow will be a better > day! > Ella ...give yourself a little time to grieve for what you have lost and > then do your best to put it behind you... > > All the best! > Rob in New Jersey > > ------------------------------ > *From:* [email protected] [mailto:[email protected]] > *Sent:* Monday, September 27, 2010 2:28 PM > *To:* [email protected] > *Subject:* [TMIC] It's my birthday > > Hello everyone, > Today I am TM 10 and not sure of how I feel. The fact that it is cloudy out > doesn't help either. Ten years ago I went into a coma and awoke weeks later > not able to move anything, not even my head. Eventually I got everything > back but my legs and what happened in the 90's. Am I depressed? I say I am > but doctors don't think so, just a bit of sadness. I think I live 80% in my > head so I don't dwell on the pain below and everything else that goes along > with TM. Am I scared? Sometimes when I think yes this is my new life knowing > how bad I want the old. You guys are a God-send and the support we give each > other is beyond words. Thanks, I thought I was feeling sorry for myself but > writing this made me feel better, have a great day........Ella > > > >
