Jim, we don't have to look far to see he hurt with this thing. my heart goes out to you and your family. keep your chin up no matter how hard it seams to be. all we can do is all we can do. like i said at other times,,sometimes I want so bad to just walk right out of this body! that day will come but not at this moment. this group has helped me to vent my frustration and to see that I a not by any means alone with this terrible disorder. one thing i have learned is to be patient with those that are well,they can empathize with us but unless they have TM they cannot sympathize with us. but we can sympathize with each other here and have consolation in knowing that others care that have never met us face to face. unless of course you are on facebok,,,,, ;) be blessed bro John.
--- On Tue, 9/28/10, James Berg <[email protected]> wrote: From: James Berg <[email protected]> Subject: Re: [TMIC] It's my birthday To: [email protected] Cc: "john snodgrass" <[email protected]>, "transverse myelitis" <[email protected]>, [email protected] Date: Tuesday, September 28, 2010, 1:50 AM I'm Jim and I've only had TM for 6 months. I'm 63 and have led a very active life here in Hawaii. In a two day period in March I became paralyzed from the waist down. No bladder or bowel function. A week of Solu-medrol and then a week of IVIG treatment that cost 27,000 and no results. Neither my wife or I are able to work (she cares for me) and we are going into bankruptcy. We've lost the house and live with my son. I cry for my wife who has to suffer with me. I pray and pray for relief. I have almost committed suicide several times but leaving my wife that way has held me together. I can not imagine living like this for 10 or more years. Kudos to all of you who have managed some level of happiness. On Mon, Sep 27, 2010 at 12:41 PM, <[email protected]> wrote: Yes we all have days like this... my 6 year "anniversay" is comming up oct 6th and it's hard not to dwell on how my life changed so much within a few hours... to go from being so active to tired just getting out of bed and try to explain to others how I feel. my TM family gets me thru so much! ----- Original Message ----- From: "john snodgrass" <[email protected]> To: [email protected] Cc: "transverse myelitis" <[email protected]> Sent: Monday, September 27, 2010 5:56:11 PM Subject: RE: [TMIC] It's my birthday Rob is right. yesterday i had a terrible day. wanted to go visit my 79 year old dad and couldn't. chair to bed all day! there was an accident below my home Saturday evening and i wanted to hurry to see if i could help or was it family or what and i almost fell down a lot of times! if i wanted to be sure on my feet i should use a stick or a walker but i am hard headed and wont s i look like a drunk man walking. today was a little better but still a lot of pain. I am @ 2.5 years into this thing and there was one day when i was so frustrated that i cried. sometimes you have to if you have to. i think self pity is natural when it comes to health problems. anyone who would cast a bad light on someone for that just may find themselves in a worse condition. not long after I had my virus in my spine i found out that one of my best friends had a virus that went to his heart. he is still functioning who who woulda thunk it! sometimes i just want to walk right out of this body. then i think of my loved ones and friends,and of course you folks that fight this same fight with me. keep on the firing line. tomorrow is a better day. --- On Mon, 9/27/10, [email protected] <[email protected]> wrote: From: [email protected] <[email protected]> Subject: RE: [TMIC] It's my birthday To: "Robert Pall" <[email protected]> Cc: [email protected] Date: Monday, September 27, 2010, 5:39 PM Rob, I think everyone has days that tm is overwhelming. There have been several days lately that I've cried about all that I lost when tm struck me on 8/13/95. Except for those here on the list,nobody "gets it" and how hard just getting out of bed and functioning every day is. I thank all of you for being here. Yes Rob,tomorrow will be a better day! Cheryl in Easthampton,MA. --- On Mon, 9/27/10, Robert Pall <[email protected]> wrote: From: Robert Pall <[email protected]> Subject: RE: [TMIC] It's my birthday To: [email protected], [email protected] Date: Monday, September 27, 2010, 3:21 PM What a coincidence ...today is my Bar Mitzvah ...it is exactly 13 years for me today...not sure how to celebrate. I came down with TM one week after my 50th birthday....therefore when i had my big 10 year mark it was the first time I allowed myself self pity...I broke down for a day or two and just felt so much self pity......and then i realized how many wonderful things I have and I went back to my normally positive attitude....but today after 13 years I just think when I go home I will have a good cry & allow myself tonight to feel sorry for myself. Tomorrow will be a better day! Ella ...give yourself a little time to grieve for what you have lost and then do your best to put it behind you... All the best! Rob in New Jersey From: [email protected] [mailto:[email protected]] Sent: Monday, September 27, 2010 2:28 PM To: [email protected] Subject: [TMIC] It's my birthday Hello everyone, Today I am TM 10 and not sure of how I feel. The fact that it is cloudy out doesn't help either. Ten years ago I went into a coma and awoke weeks later not able to move anything, not even my head. Eventually I got everything back but my legs and what happened in the 90's. Am I depressed? I say I am but doctors don't think so, just a bit of sadness. I think I live 80% in my head so I don't dwell on the pain below and everything else that goes along with TM. Am I scared? Sometimes when I think yes this is my new life knowing how bad I want the old. You guys are a God-send and the support we give each other is beyond words. Thanks, I thought I was feeling sorry for myself but writing this made me feel better, have a great day........Ella
