Hi James, My world came crashing down in 2001. My hands were paralyzed! It was very painful and depressing at first, but slowly I have become more resigned to my situation. Everyone tells me that I have a great attitude, and that is because I had two options--a positive attitude or bad attitude--so I decided that I've always been positive and I would remain that way. People don't sympathize for long any way. Drugs for depression help, too. Keep your chin up! We are here for you. Have a wonderful day! Priscilla
________________________________ From: James Berg <[email protected]> To: [email protected] Cc: john snodgrass <[email protected]>; transverse myelitis <[email protected]>; [email protected] Sent: Tue, September 28, 2010 1:50:57 AM Subject: Re: [TMIC] It's my birthday I'm Jim and I've only had TM for 6 months. I'm 63 and have led a very active life here in Hawaii. In a two day period in March I became paralyzed from the waist down. No bladder or bowel function. A week of Solu-medrol and then a week of IVIG treatment that cost 27,000 and no results. Neither my wife or I are able to work (she cares for me) and we are going into bankruptcy. We've lost the house and live with my son. I cry for my wife who has to suffer with me. I pray and pray for relief. I have almost committed suicide several times but leaving my wife that way has held me together. I can not imagine living like this for 10 or more years. Kudos to all of you who have managed some level of happiness. On Mon, Sep 27, 2010 at 12:41 PM, <[email protected]> wrote: Yes we all have days like this... my 6 year "anniversay" is comming up oct 6th and it's hard not to dwell on how my life changed so much within a few hours... to go from being so active to tired just getting out of bed and try to explain to others how I feel. my TM family gets me thru so much! > >----- Original Message ----- >From: "john snodgrass" <[email protected]> >To: [email protected] >Cc: "transverse myelitis" <[email protected]> >Sent: Monday, September 27, 2010 5:56:11 PM >Subject: RE: [TMIC] It's my birthday > > >Rob is right. >yesterday i had a terrible day. wanted to go visit my 79 year old dad and >couldn't. >chair to bed all day! > >there was an accident below my home Saturday evening and i wanted to hurry to >see if i could help or was it family or what and i almost fell down a lot of >times! >if i wanted to be sure on my feet i should use a stick or a walker but i am >hard >headed and wont s i look like a drunk man walking. > >today was a little better but still a lot of pain. > >I am @ 2.5 years into this thing and there was one day when i was so >frustrated >that i cried. > >sometimes you have to if you have to. > > i think self pity is natural when it comes to health problems. > >anyone who would cast a bad light on someone for that just may find themselves >in a worse condition. > >not long after I had my virus in my spine i found out that one of my best >friends had a virus that went to his heart. > >he is still functioning who who woulda thunk it! > >sometimes i just want to walk right out of this body. > >then i think of my loved ones and friends,and of course you folks that fight >this same fight with me. > >keep on the firing line. > > > >tomorrow is a better day. > > >--- On Mon, 9/27/10, [email protected] <[email protected]> wrote: > > >>From: [email protected] <[email protected]> >>Subject: RE: [TMIC] It's my birthday >>To: "Robert Pall" <[email protected]> >>Cc: [email protected] >>Date: Monday, September 27, 2010, 5:39 PM >> >> >>Rob, >> I think everyone has days that tm is overwhelming. There have been several >>days lately that I've cried about all that I lost when tm struck me on >>8/13/95. >>Except for those here on the list,nobody "gets it" and how hard just getting >>out >>of bed and functioning every day is. >>I thank all of you for being here. >> Yes Rob,tomorrow will be a better day! >> Cheryl in Easthampton,MA. >> >> >>--- On Mon, 9/27/10, Robert Pall <[email protected]> wrote: >> >> >>>From: Robert Pall <[email protected]> >>>Subject: RE: [TMIC] It's my birthday >>>To: [email protected], [email protected] >>>Date: Monday, September 27, 2010, 3:21 PM >>> >>> >>>What a coincidence ...today is my Bar Mitzvah ...it is exactly 13 years for >>>me >>>today...not sure how to celebrate. I came down with TM one week after my >>>50th >>>birthday....therefore when i had my big 10 year mark it was the first time I >>>allowed myself self pity...I broke down for a day or two and just felt so >>>much >>>self pity......and then i realized how many wonderful things I have and I >>>went >>>back to my normally positive attitude....but today after 13 years I just >>>think >>>when I go home I will have a good cry & allow myself tonight to feel sorry >>>for >>>myself. Tomorrow will be a better day! >>>Ella ...give yourself a little time to grieve for what you have lost and >>>then do >>>your best to put it behind you... >>> >>>All the best! >>>Rob in New Jersey >>> >>> ________________________________ From: [email protected] [mailto:[email protected]] >>>Sent: Monday, September 27, 2010 2:28 PM >>>To: [email protected] >>>Subject: [TMIC] It's my birthday >>> >>>Hello everyone, >>>Today I am TM 10 and not sure of how I feel. The fact that it is cloudy out >>>doesn't help either. Ten years ago I went into a coma and awoke weeks later >>>not >>>able to move anything, not even my head. Eventually I got everything back >>>but my >>>legs and what happened in the 90's. Am I depressed? I say I am but doctors >>>don't >>>think so, just a bit of sadness. I think I live 80% in my head so I don't >>>dwell >>>on the pain below and everything else that goes along with TM. Am I scared? >>>Sometimes when I think yes this is my new life knowing how bad I want the >>>old. >>>You guys are a God-send and the support we give each other is beyond words. >>>Thanks, I thought I was feeling sorry for myself but writing this made me >>>feel >>>better, have a great day........Ella >>> >> >
