The one thing that Linda & I thought about, was Dalton's seizures and why. We know there will be more on this subject once the video is downloaded. That people with ADEM can have a lot of seizures. Symptoms, which vary among individuals, may include headache, delirium, lethargy, coma, seizures, stiff neck, fever, ataxia, optic neuritis, transverse myelitis, vomiting, and weight loss. http://www.myelitis.org/adem.htm Please check into this Dalton, hope it's some help, Todd in CC, TX
--- On Mon, 10/11/10, Deborah Nord Capen <[email protected]> wrote: From: Deborah Nord Capen <[email protected]> Subject: RE: [TMIC] Symposium To: "'Regina Rummel'" <[email protected]>, [email protected] Date: Monday, October 11, 2010, 12:49 PM Hi Regina, The symposium was in Dallas, and about 150 TM’ers and their caregivers attended, which made it a success. I met Linda from Idaho there, Todd Tarno and Cora were there. Those were the only people that I recognized from the tmic list. It will take a few weeks for the videographers to edit the talks, but Jim will be posting them online at the TMA website as soon as they are available. What was special about this one was that about a half dozen kids with TM and their parents attended, and the kids all made fast friendships, and given lots to do by our pediatric nurse, Janet Dean, who is from Kennedy Krieger in Baltimore. It is really hard for young ones to keep still and not get bored while sitting and listening to the doctors talk about bowel/bladder management, spasticity issues, optic neuritis, and all the other issues that we face. Stay posted, I am sure that Jim will notify the list once the videos are available. Take care, Debbie From: Regina Rummel [mailto:[email protected]] Sent: Monday, October 11, 2010 10:25 AM To: [email protected] Subject: [TMIC] Symposium I haven't heard anything about the Austin, TX symposium. Any comments? Was it productive? Can we access any reporting online like we did before?
