Re: [TMIC] SymposiumDalton, this is such good news that the seizures are now few and far between. That's wonderful. I'm sorry that when you do have one it is so bad. When they last a day, it seems only natural that you would be weak for many days to follow. That's a lot for your body to go through. Hang in there, Dalton and remember we're all in this together.
take care, Linda in Eagle, ID ----- Original Message ----- From: Dalton Garis<mailto:[email protected]> To: Todd Tarno<mailto:[email protected]> ; TMIC<mailto:[email protected]> Sent: Monday, October 11, 2010 9:57 PM Subject: Re: [TMIC] Symposium I will, thanks; I am happy to report that the seizures have become few and far between, but when they come they usually last a day and take several days to recover from. I've gone 17 days without a seizure of any kind, just the usual muscle spasms that make control difficult sometimes. I want to thank you all for getting me through some scary times. I'm not saying they're over-this is out of my control, but you all have really helped me as nothing else has. Dalton ------------------------------------------------------------------------------ From: Todd Tarno <[email protected]<about:[email protected]>> Date: Mon, 11 Oct 2010 12:10:30 -0700 (PDT) To: TMIC <[email protected]<about:[email protected]>> Cc: Dalton Garis <[email protected]<about:[email protected]>> Subject: Fw: RE: [TMIC] Symposium The one thing that Linda & I thought about, was Dalton's seizures and why. We know there will be more on this subject once the video is downloaded. That people with ADEM can have a lot of seizures. Symptoms, which vary among individuals, may include headache, delirium, lethargy, coma, seizures, stiff neck, fever, ataxia, optic neuritis, transverse myelitis, vomiting, and weight loss. http://www.myelitis.org/adem.htm<http://www.myelitis.org/adem.htm> Please check into this Dalton, hope it's some help, Todd in CC, TX --- On Mon, 10/11/10, Deborah Nord Capen <[email protected]<about:[email protected]>> wrote: From: Deborah Nord Capen <[email protected]<about:[email protected]>> Subject: RE: [TMIC] Symposium To: "'Regina Rummel'" <[email protected]<about:[email protected]>>, [email protected]<about:[email protected]> Date: Monday, October 11, 2010, 12:49 PM Hi Regina, The symposium was in Dallas, and about 150 TM'ers and their caregivers attended, which made it a success. I met Linda from Idaho there, Todd Tarno and Cora were there. Those were the only people that I recognized from the tmic list. It will take a few weeks for the videographers to edit the talks, but Jim will be posting them online at the TMA website as soon as they are available. What was special about this one was that about a half dozen kids with TM and their parents attended, and the kids all made fast friendships, and given lots to do by our pediatric nurse, Janet Dean, who is from Kennedy Krieger in Baltimore. It is really hard for young ones to keep still and not get bored while sitting and listening to the doctors talk about bowel/bladder management, spasticity issues, optic neuritis, and all the other issues that we face. Stay posted, I am sure that Jim will notify the list once the videos are available. Take care, Debbie From: Regina Rummel [mailto:[email protected]<mailto:[email protected]>] Sent: Monday, October 11, 2010 10:25 AM To: [email protected]<about:[email protected]> Subject: [TMIC] Symposium I haven't heard anything about the Austin, TX symposium. Any comments? Was it productive? Can we access any reporting online like we did before?
