I will, thanks; I am happy to report that the seizures have become few and far between, but when they come they usually last a day and take several days to recover from. I¹ve gone 17 days without a seizure of any kind, just the usual muscle spasms that make control difficult sometimes.
I want to thank you all for getting me through some scary times. I¹m not saying they¹re overthis is out of my control, but you all have really helped me as nothing else has. Dalton From: Todd Tarno <[email protected]> Date: Mon, 11 Oct 2010 12:10:30 -0700 (PDT) To: TMIC <[email protected]> Cc: Dalton Garis <[email protected]> Subject: Fw: RE: [TMIC] Symposium The one thing that Linda & I thought about, was Dalton's seizures and why. We know there will be more on this subject once the video is downloaded. That people with ADEM can have a lot of seizures. Symptoms, which vary among individuals, may include headache, delirium, lethargy, coma, seizures, stiff neck, fever, ataxia, optic neuritis, transverse myelitis, vomiting, and weight loss. http://www.myelitis.org/adem.htm Please check into this Dalton, hope it's some help, Todd in CC, TX --- On Mon, 10/11/10, Deborah Nord Capen <[email protected]> wrote: > > From: Deborah Nord Capen <[email protected]> > Subject: RE: [TMIC] Symposium > To: "'Regina Rummel'" <[email protected]>, [email protected] > Date: Monday, October 11, 2010, 12:49 PM > > Hi Regina, > The symposium was in Dallas, and about 150 TM¹ers and their caregivers > attended, which made it a success. I met Linda from Idaho there, Todd Tarno > and Cora were there. Those were the only people that I recognized from the > tmic list. > > It will take a few weeks for the videographers to edit the talks, but Jim will > be posting them online at the TMA website as soon as they are available. What > was special about this one was that about a half dozen kids with TM and their > parents attended, and the kids all made fast friendships, and given lots to do > by our pediatric nurse, Janet Dean, who is from Kennedy Krieger in Baltimore. > It is really hard for young ones to keep still and not get bored while sitting > and listening to the doctors talk about bowel/bladder management, spasticity > issues, optic neuritis, and all the other issues that we face. > > Stay posted, I am sure that Jim will notify the list once the videos are > available. > Take care, > Debbie > > > > > From: Regina Rummel [mailto:[email protected]] > Sent: Monday, October 11, 2010 10:25 AM > To: [email protected] > Subject: [TMIC] Symposium > > I haven't heard anything about the Austin, TX symposium. > Any comments? Was it productive? Can we access any reporting online like we > did before? > >
