i am one handed, recovering nicely from carpal tunnel surgery.
i am strongly considering the mitochondria diet..
fascinating
i,too.believe our immuine systems are the bandits.
susan,phx,az
On Jan 15, 2012, at 1:12 PM, john snodgrass wrote:
thats is a good case to wonder.
in a way I wonder if we minded our mitochondria like the Dr lady
done in the video with MS, would it make any difference at all
because it seams as if our immune system was more of a bandit,,,not
having good instructions,when we were attacked.
then again it may just be,,,,one of those things
From: Elizabeth Clark <[email protected]>
To: 'Janice Nichols' <[email protected]>; [email protected];
'Robert Pall' <[email protected]>
Sent: Sunday, January 15, 2012 2:30 PM
Subject: RE: [TMIC] Is it really so important to know?
While I agree, for the most part, about getting on with our lives
with what we have, I also have a desire to know ‘the cause’ for the
following reasons…
Since contracting TM almost 6 years ago and discovering it is an
auto-immune condition, my sister has been diagnosed with two
different auto-immune conditions – Shingles (about 4 yrs. ago) and
Celiac (gluten intolerance, just this last year).
My mother has had three auto-immune conditions – Rheumatoid
Arthritis, Temporal Arteritis (inflammation of blood vessels in
arteries of the head, about 5 yrs. ago) and Alopecia (hair loss –
two yrs. ago).
In addition to TM, and though not considered an auto-immune
condition, I also have Scoliosis – ‘idiopathic’ like my TM.
Because of all of this, I worry about my two children developing
any of the same – or other – auto-immune conditions at some point
in their lives. I’d like to know there is some way in the near
future to predict and/or prevent that happening. At 21 and 22,
they’ve passed the ‘adolescent scoliosis’ age of 10-13 yrs, but my
sister and I weren’t dx’d with the rest until our 50’s and my
mother’s began in her 70’s.
I’m sure this has occurred to other TM’ers who worry about having
passed this or some other condition on to their children. Is it
just genetics and was never realized years before, or is it
environmental or related to all the processed food we eat that’s
affected the depletion of vital vitamins and minerals our bodies
need to be healthy?
Whatever the cause, I want to know. In the meantime, I do what I
can with what I have to lead the best life possible.
Betty
(in Northern California)
From: Janice Nichols [mailto:[email protected]]
Sent: Sunday, January 15, 2012 10:03 AM
To: [email protected]; Robert Pall
Subject: Re: [TMIC] Is it really so important to know?
Rob, I agree with you 100%. I admit I am really curious as to the
“why” of it, but am getting used to my new life and am adjusting to
most of it. All we can do, at this point, is treat the symptoms
and share successes with the other TM’ers. Who knows, it just
might help someone else - as I suspect has happened fairly often.
Janice
From: Robert Pall
Sent: Sunday, January 15, 2012 11:12 AM
To: [email protected]
Subject: [TMIC] Is it really so important to know?
I have had TM for more than 14 years and I have gone to the best
Doctors (Dr. Kerr). In this group as well as some of the other
facebook groups there seems to be a preoccupation with trying to
find the cause that brought TM into our lives. I certainly
understand the importance of medical researchers looking for these
answers but I don't understand why it is so important for us to
have a definitive answer as to why we were unlucky enough to
contact TM.
I am a layman when it comes to our condition. I see my neuro twice
a year basically for pain management. I do not waste my time trying
to answer a question for which there is no answer.
We were just unlucky enough to have hit the million to one
lottery....why us..was it stress, was it a flu shot, was it just a
common cold that our immune system attacked improperly????
God only knows ....and try as we might how are we supposed to
figure out the cause when none of our doctors have been able to?
For me the most important things that a support group like ours can
supply is the medications that have been sucessful, and or the
doctors that we have confidence in. I like all of you pray for a
cure....but at my age (64) I pray it does not get worse and that
new medications might make me feel better.
Ok I am starting to ramble....
All the best to all!
Rob in New Jersey
