Jane, This is really new to me - the fact that you have had so many episodes/attacks of TM, and then you are back to normal. I don’t know anything about your other disease, but I am sure you have checked it out. Hope someone will pop up here to talk to you about it and can empathize. Janice
From: [email protected] Sent: Sunday, January 15, 2012 3:19 PM To: [email protected] ; [email protected] Subject: Re: [TMIC] Is it really so important to know? I was told I had TM on April 26, 1998 although I had been feeling numb and tingly in my leg and trunk since October. It was a slow onset. It is almost 14 years! Don't know why my immune system attacked me, but it did. I have had 6 episodes where I felt numb and tingly and the doctor put me back on steroids and it went away. Personally I think stress was a big factor in my attacks. I also have another immune disease-bulbous pempgoid. Now I am starting to ramble. It helps to talk to someone who knows what I am talking about and it did initially involve my brain because I could not think of the right words or write them. That has returned slowly. Jane/Splendora Tx In a message dated 1/15/2012 11:12:28 A.M. Central Standard Time, [email protected] writes: I have had TM for more than 14 years and I have gone to the best Doctors (Dr. Kerr). In this group as well as some of the other facebook groups there seems to be a preoccupation with trying to find the cause that brought TM into our lives. I certainly understand the importance of medical researchers looking for these answers but I don't understand why it is so important for us to have a definitive answer as to why we were unlucky enough to contact TM. I am a layman when it comes to our condition. I see my neuro twice a year basically for pain management. I do not waste my time trying to answer a question for which there is no answer. We were just unlucky enough to have hit the million to one lottery....why us..was it stress, was it a flu shot, was it just a common cold that our immune system attacked improperly???? God only knows ....and try as we might how are we supposed to figure out the cause when none of our doctors have been able to? For me the most important things that a support group like ours can supply is the medications that have been sucessful, and or the doctors that we have confidence in. I like all of you pray for a cure....but at my age (64) I pray it does not get worse and that new medications might make me feel better. Ok I am starting to ramble.... All the best to all! Rob in New Jersey
