*We may not pass on TM, but both my daughters have auto immune
disorders; my youngest brother has MS, and his 2 children have auto
immune disorders, my older brother has 1 daughter . The males (3) all
have neuropathic diseases, the females (4) have endocrine diseases.
Figure that out! There is a defect in our DNA I believe, they just have
not found it yet, or they are not looking for it. **_I DO NOT BELIEVE
THAT AUTO IMMUNE DISORDERS ARE NOT HEREDITARY! _And it all comes from my
mothers side of the family, which we can find nothing about as she was
adopted! I would say be watchful for signs, don't freak out, but be
watchful. This is just my personal opinion from my family, I cannot
speak for any others.
Peace,
Bernie in Texas*
_
_
On 1/15/2012 10:45 PM, Janice Nichols wrote:
I have had TM for 5 years and one of the first questions I asked my
doctors was the possibility of our daughter “inheriting” this
disease. I was told that they think it is not inherited,
but I know they don’t know a lot about TM. I do think the majority
of us have not had it passed on to our children, but not so sure of a
few others.
Janice
*From:* Elizabeth Clark <mailto:[email protected]>
*Sent:* Sunday, January 15, 2012 1:30 PM
*To:* 'Janice Nichols' <mailto:[email protected]> ;
[email protected] <mailto:[email protected]> ; 'Robert Pall'
<mailto:[email protected]>
*Subject:* RE: [TMIC] Is it really so important to know?
While I agree, for the most part, about getting on with our lives with
what we have, I also have a desire to know ‘the cause’ for the
following reasons…
Since contracting TM almost 6 years ago and discovering it is an
auto-immune condition, my sister has been diagnosed with two different
auto-immune conditions – Shingles (about 4 yrs. ago) and Celiac
(gluten intolerance, just this last year).
My mother has had three auto-immune conditions – Rheumatoid Arthritis,
Temporal Arteritis (inflammation of blood vessels in arteries of the
head, about 5 yrs. ago) and Alopecia (hair loss – two yrs. ago).
In addition to TM, and though not considered an auto-immune condition,
I also have Scoliosis – ‘idiopathic’ like my TM.
Because of all of this, I worry about my two children developing any
of the same – or other – auto-immune conditions at some point in their
lives. I’d like to know there is some way in the near future to
predict and/or prevent that happening. At 21 and 22, they’ve passed
the ‘adolescent scoliosis’ age of 10-13 yrs, but my sister and I
weren’t dx’d with the rest until our 50’s and my mother’s began in her
70’s.
I’m sure this has occurred to other TM’ers who worry about having
passed this or some other condition on to their children. Is it just
genetics and was never realized years before, or is it environmental
or related to all the processed food we eat that’s affected the
depletion of vital vitamins and minerals our bodies need to be healthy?
Whatever the cause, I want to know. In the meantime, I do what I can
with what I have to lead the best life possible.
Betty
(in Northern California)
------------------------------------------------------------------------
*From:*Janice Nichols [mailto:[email protected]]
*Sent:* Sunday, January 15, 2012 10:03 AM
*To:* [email protected]; Robert Pall
*Subject:* Re: [TMIC] Is it really so important to know?
Rob, I agree with you 100%. I admit I am really curious as to the
“why” of it, but am getting used to my new life and am adjusting to
most of it. All we can do, at this point, is treat the symptoms
and share successes with the other TM’ers. Who knows, it just might
help someone else - as I suspect has happened fairly often.
Janice
*From:*Robert Pall <mailto:[email protected]>
*Sent:*Sunday, January 15, 2012 11:12 AM
*To:*[email protected] <mailto:[email protected]>
*Subject:*[TMIC] Is it really so important to know?
I have had TM for more than 14 years and I have gone to the best
Doctors (Dr. Kerr). In this group as well as some of the other
facebook groups there seems to be a preoccupation with trying to find
the cause that brought TM into our lives. I certainly understand the
importance of medical researchers looking for these answers but I
don't understand why it is so important for us to have a definitive
answer as to why we were unlucky enough to contact TM.
I am a layman when it comes to our condition. I see my neuro twice a
year basically for pain management. I do not waste my time trying to
answer a question for which there is no answer.
We were just unlucky enough to have hit the million to one
lottery....why us..was it stress, was it a flu shot, was it just a
common cold that our immune system attacked improperly????
God only knows ....and try as we might how are we supposed to figure
out the cause when none of our doctors have been able to?
For me the most important things that a support group like ours can
supply is the medications that have been sucessful, and or the doctors
that we have confidence in. I like all of you pray for a cure....but
at my age (64) I pray it does not get worse and that new medications
might make me feel better.
Ok I am starting to ramble....
All the best to all!
Rob in New Jersey
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