I understand the desire to know and understand what caused us to get
TM. However the fact is that no matter how much research one does they will not
find an answer because one does not exist at this time. I believe we were just
unlucky and therefore I will not waste my time looking into the cause.....but I
will spend much time looking for the right medications that can relieve my
suffering. Perhaps someday the medical community will provide us with the
answer....until then I will do the best I can to fight this condition and pray
for a cure (especially for the younger people).
All the best!
Rob in New Jersey
-----Original Message-----
From: PAMELA S <[email protected]>
To: jannic <[email protected]>; celrods <[email protected]>; robthecfo
<[email protected]>; TMC Group <[email protected]>
Sent: Tue, Jan 17, 2012 1:52 pm
Subject: RE: [TMIC] Is it really so important to know?
Hello all; I agree with Celrod on this. I would like to know what causes
things because of the reoccurance of symptoms after recovery for a while. I
would like to prevent them. I also notice a tendancy to autoimmune type
problems in the family tree. But, my only concern with cause is prevention of
further problems because I do like what I do. Celrod, I've had the same
problem with word finding and written communication during acute episodes.
Neurologists will claim I'm depressed. But, the only time I feel depressed is
when I can't work due to this stuff. When I'm working I feel great. And, it
usually takes quite a bit of pain and prolonged periods of inactivity to get me
down. So, I really do believe this is the cause of the depression, not the
other way around. I am beginning that "greens" or "hunter gatherer diet".
It's not what I used to call hunter gatherer diet when we talked about diabetes
prevention in native americans, but that was a long time ago, and it'll do. Pam
From: [email protected]
To: [email protected]; [email protected]; [email protected]
Subject: Re: [TMIC] Is it really so important to know?
Date: Sun, 15 Jan 2012 22:56:07 -0600
Jane,
This is really new to me - the fact that you have had so many
episodes/attacks of TM, and then you are back to normal. I don’t know
anything about your other disease, but I am sure
you have checked it out. Hope someone will pop up here to talk to you about
it and can empathize.
Janice
From: [email protected]
Sent: Sunday, January 15, 2012 3:19 PM
To: [email protected] ; [email protected]
Subject: Re: [TMIC] Is it really so important to know?
I was told I had TM on April 26, 1998 although I had been feeling numb and
tingly in my leg and trunk since October. It was a slow onset. It is almost 14
years! Don't know why my immune system attacked me, but it did. I have had 6
episodes where I felt numb and tingly and the doctor put me back on steroids
and it went away. Personally I think stress was a big factor in my attacks. I
also have another immune disease-bulbous pempgoid. Now I am starting to ramble.
It helps to talk to someone who knows what I am talking about and it did
initially involve my brain because I could not think of the right words or
write them. That has returned slowly.
Jane/Splendora Tx
In a message dated 1/15/2012 11:12:28 A.M. Central Standard Time,
[email protected] writes:
I have had TM for more than 14 years and I have gone to the best Doctors (Dr.
Kerr). In this group as well as some of the other facebook groups there seems
to be a preoccupation with trying to find the cause that brought TM into our
lives. I certainly understand the importance of medical researchers looking
for these answers but I don't understand why it is so important for us to
have a definitive answer as to why we were unlucky enough to contact TM.
I am a layman when it comes to our condition. I see my neuro twice a year
basically for pain management. I do not waste my time trying to answer a
question for which there is no answer.
We were just unlucky enough to have hit the million to one lottery....why
us..was it stress, was it a flu shot, was it just a common cold that our
immune system attacked improperly????
God only knows ....and try as we might how are we supposed to figure out the
cause when none of our doctors have been able to?
For me the most important things that a support group like ours can supply is
the medications that have been sucessful, and or the doctors that we have
confidence in. I like all of you pray for a cure....but at my age (64) I pray
it does not get worse and that new medications might make me feel better.
Ok I am starting to ramble....
All the best to all!
Rob in New Jersey
