I prefer this to Facebook; Because this is ourselves sharing what is important to us, rather than things like, "Lisa commented on Fred's comment on Alice updating her profile picture of her 8-year-old tabby."
I like the feeling here that we are a tight community of persons with a lot of affection, respect and support for one another. DG Dalton Garis Flushing, Queens New York, USA Mobile: 718-838-0437 From: Gary Thomas <[email protected]> Date: Tuesday, 15 January 2013 12:15 PM To: "Butcher, Bernie (S&FS)" <[email protected]>, Linda Egli <[email protected]>, <[email protected]> Subject: Re: [TMIC] Face book Resent-From: <[email protected]> Resent-Date: Tue, 15 Jan 2013 09:15:22 -0800 It's nice to read all the comments. We haven't had a lot of conversation. I get on Facebook a little but not with the TM group. I think I will still take my chances and not get the flu shot. The flu was not fun, but still don't want to take a chance on another TM episode. I was very fortunate in that with the onset of TM I have a balance problem but can still walk and I do have other issues (fatigue, mild bathroom issues, etc.) but I still work, keep up the house and get by with taking it a day at a time but NOT like some others in wheelchairs and very much unable to function as they once did. So, I may keep on and just realize I went all these years without a shot and without flu until this season. Gary in MI > > ----- Original Message ----- > > From: Butcher, Bernie (S&FS) <mailto:[email protected]> > > To: Linda Egli <mailto:[email protected]> ; [email protected] > > Sent: Tuesday, January 15, 2013 11:54 AM > > Subject: RE: [TMIC] Face book > > > > > > I agree. I was diagnosed with TM in 2002 and MS in 2008. I think it was MS > all along. I stopped getting the flu shot in 2002, and no flu. (just lucky I > guess). I had a transplant in 1993, and my immune system is knocked down by > the anti-rejection meds. My doc and my neuro say to get the shot, but I don?t. > it?s my belief that they just don?t know, they don?t really know what causes > TM, they don?t know what causes MS, and they don?t really know what effect > the flu shot has with my condition. > > So, I?ll take my chances. I?m taking Copaxone injections for MS. > > > > > > BERNARD BUTCHER > > Honeywell Engineering > > 516-577-5868 > > > > > From: Linda Egli [mailto:[email protected]] > Sent: Tuesday, January 15, 2013 11:10 AM > To: [email protected] > Subject: Re: [TMIC] Face book > > > > > > > I have had TM for 9 years , & was told by my neurologist to never get another > flu shot or any other type of immunization (ex: tetanus or chicken pox). He > thought the flu shot was what precipitated my TM. I worry about catching the > flu, but everyone knows not to come around me if they have any type of > illness. I also pretty much stay at home & avoid crowds in the winter, so > far no flu. I agree with Gary. I got a bad cold a few months ago & it > about did me in. I can't imagine what the flu would do. I miss the old > group on TM, but I just don't trust Facebook. The TMIC list is my contact > with other TMers. Nice to see some conversation on this site. > > > > Linda E. in East Texas > > > > > > > > > > > > > > From: Gary Thomas <[email protected]> > To: Transverse Myelitis list <[email protected]> > Sent: Tuesday, January 15, 2013 8:25 AM > Subject: Re: [TMIC] Face book > > > > > > > > I used to get flu shots but stopped after getting TM in 2004. I have not > had the flu.....until this season! I got it at around Christmas and am still > not up to full strength (which is not that great anyway due to the fatigue I > already had from the TM). > > > > > > > > So, I am rethinking, should I get the shot next year, or not? Fortunately, > I did not pass the flu to my 87-year-old dad who always gets the shot but > forgot this time, or my pregnant daughter and her family visiting us while I > was sick, or my wife who has not gotten the shot either. I think her > chiropractor is not for getting it. I don't think my doctor or neurologist > had anything against getting the shot. I guess I'll have a year to think > about it??? > > > > > > > > The worst part about the flu was that my grandkids were here from Georgia and > I did not get to do much with them. > > > > > > > > Gary in Niles, MI > >> >> >> >> ----- Original Message ----- >> >> >> >> From: Robert Pall <mailto:[email protected]> >> >> >> >> To: [email protected] ; [email protected] >> >> >> >> Sent: Tuesday, January 15, 2013 8:11 AM >> >> >> >> Subject: Re: [TMIC] Face book >> >> >> >> >> >> I get the Flu and Pneumonia shot and have never gotten the flu in the past >> 15 years. And The TMIC_LIST is pretty much the only one I read...it is too >> bad that so many of our group has gone to facebook...I guess you can't stop >> progress!~ >> >> Rob in New Jersey >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> -----Original Message----- >> From: john snodgrass <[email protected]> >> To: transverse myelitis <[email protected]> >> Sent: Mon, Jan 14, 2013 10:59 pm >> Subject: Re: [TMIC] Face book >> >> >> >> >> >> >> >> >> >> i had the flu shot and the pneumonia shot the same time and i still cant >> play the violin! >> >> >> >> >> >> >> >> >> >> From: Dalton Garis <[email protected]> >> To: Pat Cooley <[email protected]>; [email protected] >> Cc: tmic <[email protected]> >> Sent: Monday, January 14, 2013 9:31 PM >> Subject: Re: [TMIC] Face book >> >> >> >> >> >> >> >> >> I still listen and read. >> >> >> >> >> >> >> >> Because I still have TM and always will. By the Way, that mustard cure has >> greatly reduced seizures for me. Now, I only get them every 10 days or so. >> >> >> >> >> >> >> >> DG >> >> >> >> >> Dalton Garis >> >> >> >> Flushing, Queens >> >> >> >> New York, USA >> >> >> >> Mobile: 718-838-0437 >> >> >> >> >> >> >> >> From: Pat Cooley <[email protected]> >> Date: Monday, 14 January 2013 8:33 PM >> To: <[email protected]> >> Cc: tmic <[email protected]> >> Subject: Re: [TMIC] Face book >> Resent-From: <[email protected]> >> Resent-Date: Mon, 14 Jan 2013 17:33:21 -0800 >> >> >> >> >> >> >> >> Patti I think you made the right decision. You have to do what is best for >> you and your family. You need to protect your mom, hubby & grandchildren. >> >> >> >> >> >> >> >> Patti C. in Wisconsin >> >> >> >> On Mon, Jan 14, 2013 at 5:39 PM, <[email protected]> wrote: >> >> I've noticed some talk of people comng back to the tmic list for discussions >> and wondered just how many people actually look at this site anymore. The >> onky discussion I have is that I received my first flu shot last Wednesday >> since my 9 years with TM. We had two deaths from the flu in our area and I >> had a fear of carrying the flu to my 86 year old Mom, my diabetic hubby, or >> my grandchildren. My fears of being a carrier outweighed my fear of a >> reaction. I called my Neurologist and asked if he had any objection to me >> getting the flu shot. His answer was go ahead and get it. >> >> >> >> Patti V - Michigan >> >> >> >> >> > >
