So let's us all keep them e-mails coming. Am game. Bobberino ----- Original Message ----- From: Pat Cooley To: Dalton Garis Cc: Gary Thomas ; Butcher, Bernie (S&FS) ; Linda Egli ; [email protected] Sent: Tuesday, January 15, 2013 7:32 PM Subject: Re: [TMIC] Face book
Dalton I am on FB, but I really missed this site and so many of the people. Also I get tired of all the pet pictures, etc. I am glad to see more of these e-mails. Patti in Wisconsin On Tue, Jan 15, 2013 at 2:29 PM, Dalton Garis <[email protected]> wrote: I prefer this to Facebook; Because this is ourselves sharing what is important to us, rather than things like, "Lisa commented on Fred's comment on Alice updating her profile picture of her 8-year-old tabby." I like the feeling here that we are a tight community of persons with a lot of affection, respect and support for one another. DG Dalton Garis Flushing, Queens New York, USA Mobile: 718-838-0437 From: Gary Thomas <[email protected]> Date: Tuesday, 15 January 2013 12:15 PM To: "Butcher, Bernie (S&FS)" <[email protected]>, Linda Egli <[email protected]>, <[email protected]> Subject: Re: [TMIC] Face book Resent-From: <[email protected]> Resent-Date: Tue, 15 Jan 2013 09:15:22 -0800 It's nice to read all the comments. We haven't had a lot of conversation. I get on Facebook a little but not with the TM group. I think I will still take my chances and not get the flu shot. The flu was not fun, but still don't want to take a chance on another TM episode. I was very fortunate in that with the onset of TM I have a balance problem but can still walk and I do have other issues (fatigue, mild bathroom issues, etc.) but I still work, keep up the house and get by with taking it a day at a time but NOT like some others in wheelchairs and very much unable to function as they once did. So, I may keep on and just realize I went all these years without a shot and without flu until this season. Gary in MI ----- Original Message ----- From: Butcher, Bernie (S&FS) To: Linda Egli ; [email protected] Sent: Tuesday, January 15, 2013 11:54 AM Subject: RE: [TMIC] Face book I agree. I was diagnosed with TM in 2002 and MS in 2008. I think it was MS all along. I stopped getting the flu shot in 2002, and no flu. (just lucky I guess). I had a transplant in 1993, and my immune system is knocked down by the anti-rejection meds. My doc and my neuro say to get the shot, but I don?t. it?s my belief that they just don?t know, they don?t really know what causes TM, they don?t know what causes MS, and they don?t really know what effect the flu shot has with my condition. So, I?ll take my chances. I?m taking Copaxone injections for MS. BERNARD BUTCHER Honeywell Engineering 516-577-5868 From: Linda Egli [mailto:[email protected]] Sent: Tuesday, January 15, 2013 11:10 AM To: [email protected] Subject: Re: [TMIC] Face book I have had TM for 9 years , & was told by my neurologist to never get another flu shot or any other type of immunization (ex: tetanus or chicken pox). He thought the flu shot was what precipitated my TM. I worry about catching the flu, but everyone knows not to come around me if they have any type of illness. I also pretty much stay at home & avoid crowds in the winter, so far no flu. I agree with Gary. I got a bad cold a few months ago & it about did me in. I can't imagine what the flu would do. I miss the old group on TM, but I just don't trust Facebook. The TMIC list is my contact with other TMers. Nice to see some conversation on this site. Linda E. in East Texas -------------------------------------------------------------------------- From: Gary Thomas <[email protected]> To: Transverse Myelitis list <[email protected]> Sent: Tuesday, January 15, 2013 8:25 AM Subject: Re: [TMIC] Face book I used to get flu shots but stopped after getting TM in 2004. I have not had the flu.....until this season! I got it at around Christmas and am still not up to full strength (which is not that great anyway due to the fatigue I already had from the TM). So, I am rethinking, should I get the shot next year, or not? Fortunately, I did not pass the flu to my 87-year-old dad who always gets the shot but forgot this time, or my pregnant daughter and her family visiting us while I was sick, or my wife who has not gotten the shot either. I think her chiropractor is not for getting it. I don't think my doctor or neurologist had anything against getting the shot. I guess I'll have a year to think about it??? The worst part about the flu was that my grandkids were here from Georgia and I did not get to do much with them. Gary in Niles, MI ----- Original Message ----- From: Robert Pall To: [email protected] ; [email protected] Sent: Tuesday, January 15, 2013 8:11 AM Subject: Re: [TMIC] Face book I get the Flu and Pneumonia shot and have never gotten the flu in the past 15 years. And The TMIC_LIST is pretty much the only one I read...it is too bad that so many of our group has gone to facebook...I guess you can't stop progress!~ Rob in New Jersey -----Original Message----- From: john snodgrass <[email protected]> To: transverse myelitis <[email protected]> Sent: Mon, Jan 14, 2013 10:59 pm Subject: Re: [TMIC] Face book i had the flu shot and the pneumonia shot the same time and i still cant play the violin! ------------------------------------------------------------------------ From: Dalton Garis <[email protected]> To: Pat Cooley <[email protected]>; [email protected] Cc: tmic <[email protected]> Sent: Monday, January 14, 2013 9:31 PM Subject: Re: [TMIC] Face book I still listen and read. Because I still have TM and always will. By the Way, that mustard cure has greatly reduced seizures for me. Now, I only get them every 10 days or so. DG Dalton Garis Flushing, Queens New York, USA Mobile: 718-838-0437 From: Pat Cooley <[email protected]> Date: Monday, 14 January 2013 8:33 PM To: <[email protected]> Cc: tmic <[email protected]> Subject: Re: [TMIC] Face book Resent-From: <[email protected]> Resent-Date: Mon, 14 Jan 2013 17:33:21 -0800 Patti I think you made the right decision. You have to do what is best for you and your family. You need to protect your mom, hubby & grandchildren. Patti C. in Wisconsin On Mon, Jan 14, 2013 at 5:39 PM, <[email protected]> wrote: I've noticed some talk of people comng back to the tmic list for discussions and wondered just how many people actually look at this site anymore. The onky discussion I have is that I received my first flu shot last Wednesday since my 9 years with TM. We had two deaths from the flu in our area and I had a fear of carrying the flu to my 86 year old Mom, my diabetic hubby, or my grandchildren. My fears of being a carrier outweighed my fear of a reaction. I called my Neurologist and asked if he had any objection to me getting the flu shot. His answer was go ahead and get it. Patti V - Michigan
