Hi,
I have been c/5 since 1996. i've been through the awful "hemmy" years. I
dreaded bowel days which were every other day. I tried dozens of things
to help with hemmys. I ended up having surgery to cut them off. And I
started drinking Mirlax to soften stool. Then use magic bullets &
Enemezz(sp?) .
I had to strict diet, watch what I ate & when. Couple years ago, i got
sore by cocyx area. I ended up getting colostomy operation. Wow, what
relief of doing bowel care.
I got an air mattress and roho air cushion to deal with sores. You can
get air mattress on Amazon way cheaper than medical supply dealer.
I did get lot pain from laying on my side even on air mattress. I have
to take pain meds.
There is some cushions that have cocyx are cut out. There alternating
cushions too. expensive.
I tried different donuts cushions. I would love to develop a cushion to
keep your scrotum are from touching anything. lay on memory foam with
cutout. or cushion with cut out.
derrick in getting cold PA
On 10/2/22 1:02 PM, Carla Aarssen wrote:
Do you have an air mattress? Because they are awesome for relieving
pressure. Most of the time I set mine to float but if I have a
pressure sore I set it to alternate and it will move air side to side
kind of like you are doing with pillow but more often and while you sleep.
I also have issues with hemorrhoids I spent 4yrs every 3 months having
them banded (rubber bands caught off blood supply) and they would fall
off within 4 days. But Dr told me we would never get ahead this way so
he finally referred me to a surgeon to have them removed. That was at
the beginning of Covid unfortunately I am still on waiting list for
surgery.
Anyway I am same level quad as you and my accident was in 2002 so
almost as many years post injury as well. If you would like to share
with eachother my email is caars...@hotmail.com. You can also find me
on Facebook.
Wishing you all the best!
Carla Aarssen
Get Outlook for Android <https://aka.ms/AAb9ysg>
------------------------------------------------------------------------
*From:* Shala Silverstein <chopsk...@gmail.com>
*Sent:* Sunday, October 2, 2022 12:28:47 AM
*To:* quad-list@eskimo.com <quad-list@eskimo.com>
*Subject:* [QUAD-L] Fingers crossed that I'm doing this properly. If
not just send it back. Thanks.
Hello my name is Shala & I had a car accident in 1999 that left me a
complete C-4,5 & 6 quadriplegic. Since then I've had a couple bumps in
the road but nothing major. Now almost 24 years later, I think some
things are taking a toll on my body & I've come to a crossroad & am
looking for some experienced advice. That being said let me tell you
about my situation, I'm sure most quads will understand when I say
that bowel movements can be tough, we need assistance. I've heard it
referred to as "ditch stem", & manual disimpaction. Well after doing
things this way for usually 5 days out of the week, I've ended up with
some hemorrhoids. So when nighttime comes I'm unable to lay flat on my
back not only because of the hemorrhoids but because of my bony
coccyx. For the last 10 years I've used a pregnancy pillow, and to
keep me over on my side I'll use a wedge or a regular pillow. After 2
hours I'm awoken in such pain in my back because of either the pillow
or the wedge, so I will switch sides and it starts all over again. I'm
wondering if anybody else deals with these two problems and has a
better way of staying off their coccyx and their butt area. Looking
forward to any advice, Shala.
