--- In [email protected], "hey00nanc" <[EMAIL PROTECTED]> wrote:
> 
> --- In [email protected], "sshine2412" <[EMAIL PROTECTED]> wrote:
> > 
> > Does anybody know how long Gleevec lasts?  It looks like most 
people 
> > are still in remission 4 or 5 years after taking this medicine, 
but 
> > I'm wondering if anyone knows about long term benefits (5-10+ 
> > years).
> 
> _______________
> 
> Hi sshine, 
> 
> Gleevec has only been taken now for about 6 years by those in the 
> earliest trials....I have been on Gleevec for 5 years (and still 
> kicking!)
> 
> Part of the answer depends on the level of response that you get 
from 
> Gleevec....ie, whether you have a cytogenetic response, get to CCR 
or 
> PCRU. There are different relapse rate %s depending on your 
response 
> to the drug. At CCR, the relaspse rate is 2% a year. 
> 
> Recently, Dr. Druker told me that he can now confidently tell a 
newly 
> diagnosed patient that their CML will be a chronic disease, managed 
by 
> drugs. If someone goes on Gleevec now and eventually relapses, 
there 
> will be the other 2nd generation drugs available (probably BMS and 
> AMN, now in trials). So, no long history with Gleevec but a good 
> outlook.
> 
> Nancy C.

Nancy,and friends who have been following our stories.....
I just got the word from Dr. Talpaz and I must admit that I'm a bit 
disappointed.  After visiting him, I felt so good.  Now, I feel like 
a just got a kick in the butt!  Only 5 of the 20 cells analyzed were 
negative which means resistance to Gleevec is definately a 
possibility. My molecular studies show a high level of disease, also. 
He has suggested trying to take 800 mg. to see if it's a real issue 
of resistance. I will return in July.  I guess I must seriously start 
considering other options - BMS being 1st on my list.  I would love 
to hear from others who have been down this road.  I'm a bit shaken. 
Dianne





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