Hi Lynn, You're definitely right that each of us has different reactions to this disease. It seems to be very individualized in many ways. Treating yourself well and being nutritionally smart is a good idea.
Actually when they discovered my Hgb was 5 I immediately was put in the hospital and got two units of blood. It then took months of procrit to get my counts back up in the 10s. Raising children requires lots of eneregy so I'm not surprised you tire out! Good luck. A procrit shot now and then could give you a boost but only if your insurance covers it. They cost $1500 each. Take good care. Susan L ----- Original Message ----- From: "Lynn" <[EMAIL PROTECTED]> To: <[email protected]> Sent: Wednesday, August 10, 2005 1:36 PM Subject: [CML] Re: I am anemic-Susan Hi Susan.. Wow, I can't believe you were even functioning at a Hem of 5! I'm glad your Procrit has brought you up to a more acceptable level. I think that it's important to realize that everyone's body is different, and where one person feels good, another might feel crummy at that level. I always hover at the low level for Hem and always low on red counts. I think I'm just really going to focus on health, and try to get those levels increased by smarter iron rich food choices, and doing everything I can to beat this thing. More exercise, and giving myself more TLC. I've really beat myself up over this CML, because nobody deserves this. I'm really sick and tired of feeling "sick and tired".. you know what I mean? I have two small daughters to raise. My youngest is going into kindergarten this Fall! It's sad that she has always known me to be sick. I want nothing more than to hang on and come out of this on top. If my body falls apart now, it won't last long enough to see the cure happen. So, I guess it's time to get things in gear. If we have to live with this disease, I guess my part is to do whatever I can to make the best of it. I'm looking forward to the day that I can say,," Remember when I had leukemia?".. can you imagine? Wouldn't that be awesome? Keep looking forward. The prize is just around the corner. Take good care, Lynn (Snickersunny) Dx 12/10/03 305,000 white count at dx PCRU 400 mg --- In [email protected], "Susan Loewenkamp" <[EMAIL PROTECTED]> wrote: > Hi Lynn, > > I don't know that I can answer all of your questions but here goes: first, > it becomes obvious at high doses of Gleevec (I'm on 800 mg) when the Hgb > just gets lower and lower. Without procrit my Hgb once dropped to 5. > Normally it would be between 8 and 9 without procrit. I remember a blood > test that told them that it was Gleevec related anemia because my iron > levels were fine and yet my Hgb was abysmally low. > > 12.6 is the goal my onc has set for me to reach and then keep me there. > He's hoping that then my Procrit shots will have to be less frequent but as > long as I'm on 800 mg I'll have to take some procrit. > > So, your "cruddy" feeling isn't coming from anemia, is my guess. > > Be well. > > Susan L > ----- Original Message ----- > From: "Lynn" <[EMAIL PROTECTED]> > To: <[email protected]> > Sent: Tuesday, August 09, 2005 5:11 PM > Subject: [CML] Re: I am anemic-Susan > > > > Hi Susan, > > > > I'm curious. What kind of test would the Dr run to find out if anemia > > is due to iron deficiency or chemo/Gleevec related? > > > > I'm on the low end for my Hemoglobin, (12.5) and have been feeling > > really cruddy. Should everyone be on iron pills? I take a regular > > multivitamin, 18 mg iron, but that doesn't seem to be doing the trick. > > > > Do you have to take Procrit forever once you start? > > > > Any/all input from yourself and others on the group would be really > > helpful. > > > > Thanks, Lynn > > > > > > > > > > > > > > > > > > --- In [email protected], "Susan Loewenkamp" <[EMAIL PROTECTED]> wrote: > >> Livia, > >> > >> First you need to find out from your doctor if you have iron > > deficiency anemia or chemotherapy related anemia. I suspect it's the > > latter. In which case you'll probably need procrit shots which is > > what I take. I also take 3 iron pills a day but supplements and > > nutrition will not make up for the anemia caused by Gleevec (IM). > >> > >> Sorry about that. > >> > >> Susan L. > >> ----- Original Message ----- > >> From: livia klescova > >> To: [email protected] > >> Sent: Tuesday, August 09, 2005 12:14 PM > >> Subject: [CML] I am anemic > >> > >> > >> Hi, > >> > >> My doctor called me yesterday, that I am anemic and I should get > > some injections to not be so tired. I realized that I couldn't run > > and work out for the last 3 days, but I did not know what is the > > cause, I just prefer to not THINK about it. : ) > >> > >> I think it is pretty common to be anemic while taking Gleevec but > > I would like to improve it by food or another supplements, NOT > > injections. > >> > >> Do you have any suggestions? > >> > >> Thanks, > >> > >> Livia > >> > >> Dx 02/05 > >> > >> 600 mg Gleevec > >> > >> __________________________________________________ > >> Do You Yahoo!? > >> Tired of spam? 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