There is a link at the top of the page at http://cmlhope.com to all of the various types of
CML trials. The two largest at the moment are the BMS and AMN trials and the VX
trial just opened.
Rob
----- Original Message -----
Sent: Tuesday, August 16, 2005 10:58
PM
Subject: Re: [CML] Re: a change for the
worse ???
Karen thats wonderful !!! Im so glad to hear things are going well :)
gives me much hope. He is trying to get me in to a trial but he hasnt said
what one the only thing I know is that it hasnt been federally approved for
him yet. I left a message for them to call me and let me know which trial so i
can read up on it. I think the gleevec just gave up lol. I had a good reponse
the first month. I went from 96 % on my FISH to 36 % ( 3 months ) then by
my third FISH all my counts went haywire and my FISH was back up to 45 %( 6
months ). Unfrotunatly I have never had a remission but I look forward to one
in the clinical trial ;) * wink.
Lots of love to my fellow CMLers,
Char :):):)
karen_andrews3
<[EMAIL PROTECTED]> wrote:
Hi
Char
I am in the BMS phase 2 trial. It is for people that stop (or
never)
respond to gleevec or for those intolerable. I would
definitely talk
to your doctor and try and get in a trial asap. I can't
tell from
your email if your doctor is or isn't trying to get you in the
trial,
but I would really push to see if you qualify and can get in
asap. It
may be months (or years) before the drug is FDA approved, so
why wait
til then if gleevec is not working. From my own personal
experience,
BMS is an awesome drug. Gleevec worked for me for
about a year and a
half (I even reached PCR-u), but then I relapsed (big
time - back to
100% ph+). I have been on BMS for 4 months and have
absolutely no
side effects and feel great. My 3 month BMB showed that I
am at CCR
and PCR went from 7.42% to .12%.
/karen
++++++++++++++++++++++++++++++++++++++++++++++++++++++++++
>
sorry about that lol lost my place any way,It turns out after only
8
months on the gleevec from 4-600 its just not working and i have a
lil
liver damage to clean up :) My doc is gonna put me on a trial .He
says
it hasnt been gov. approved yet but as soon as it is he wants me
on it.
Anyone been in one ? or in one now ? Im scared but id do
anything at
this point to feel better and extend my time.When this
all started back
in Dec.2004 My doc said 15 years maybe more till the
transplant. That
would put me at 45 y/o . dont think it sounds too
good ? Well now im
down to 2-5 due to some kind of " gaucher " type
cells in my marrow .
Anyone else have this ??? I truley interested in
some posative news from
anyone who knows anything about this stuff.
Im a lil depressed because
at this point 2-5 years I will have to
leave my babies at the ages of
17, 12 and 9. Sorry for being so
depressive. I know were all struggeling
right now. I guesss I just
decided to type at the wrong time. I love you
guyzz
> and i thank you for not only putting up with my butt but
being
here to complain to lol.
>
>
love n light Char :)
>
>
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