Re: [CML] Cold all the time

[Richard Troxel]

I think being cold has to do with either the CML or the Gleevec. I'm 61, 58 at diagnosis, and have been married for 35 years. All this time I've been the Penguin and my wife the Toucan (I love cold weather she loves tropical heat). Now our roles are reversed, I push the thermostat up and she pushes it down. Of course she also has hot flashes but that's another story. Richard loggin23 wrote: Yes, Andrea, my daughter being cold all the time is a continuing event. It is very disconcerting because she needs her house so hot and wears layers of clothing, also. At home, she is bundled up in an afghan. Probably from the low blood counts. Her RBC are low with H&H borderline critical and that is also one of the reasons she is so tired. Sue -- In CML@yahoogroups.com, andrea silveira <[EMAIL PROTECTED]> wrote: Hello Sue There is nothing for with going to other doctor for information for I am on number 4. I am also cold also wanted to know if you daugther still has that symptom or if you know what is was from? --- "S. Folle" <[EMAIL PROTECTED]> wrote: Hi. As you guys know, I believe in patients and their families being advocates for good care by knowledgeable physicians who know about CML. I am so disgusted with my daughter's oncologist. She went yesterday and tried to discuss her numerous problems and side effects and he had an excuse for every one. For example, she says she is cold all the time (as she sat there with sweather and leather jacket on) and his response was: it is winter, I'm cold, too. He didn't bother to acknowledge that her hemoglobin is 9. He acknowledged her her edema in lower extremites, said he could do an MRI for the sloushing sound in her ears but didn't know what the cause was, and take tylenol for her achy legs. TYLENOL? HELLO???? and he is a CML specialist? Oh, and he refused to sign her request for handicap plates (she can't walk through the parking lot without getting completely out of breath). He said it is his policy not to sign such things! What a jerk. It's scarey out there, folks. And that is her last trip to that guy. We'll find someone else. This will be oncologist number 3 coming up! Thank goodness we go to OHSU for the big stuff! Thanks for letting me vent! Sue...fed up in Las Vegas --------------------------------- Yahoo! FareChase - Search multiple travel sites in one click. __________________________________________ Yahoo! DSL – Something to write home about. Just $16.99/mo. or less. dsl.yahoo.com ------------------------ Yahoo! Groups Sponsor --------------------~--> Help save the life of a child. Support St. Jude Children's Research Hospital. http://us.click.yahoo.com/JrD4fD/lbOLAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: cml@yahoogroups.com Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/ New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: cml@yahoogroups.com Subscribe:  [EMAIL PROTECTED] Unsubscribe:  [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED]  CML Group Web Site http://groups.yahoo.com/group/CML YAHOO! GROUPS LINKS  Visit your group "CML" on the web.    To unsubscribe from this group, send an email to:  [EMAIL PROTECTED]    Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.