Re: [CML] Disgusted with local care

[Skim]

That is awful!.  KAren is cold always as well but she was cold all the time before dx too.  Low Iron.     I hope things get better.     Steve"S. Folle" <[EMAIL PROTECTED]> wrote:    Hi.  As you guys know, I believe in patients and their families being advocates for good care by knowledgeable physicians who know about CML.  I am so disgusted with my daughter's oncologist.  She went yesterday and tried to discuss her numerous problems and side effects and he had an excuse for every one.  For example, she says she is cold all the time (as she sat there with sweather and leather jacket on) and his response was:  it is winter, I'm cold, too.   He didn't bother to acknowledge that her hemoglobin is 9.  He acknowledged her
 her edema in lower extremites, said he could do an MRI for the sloushing sound in her ears but didn't know what the cause was, and take tylenol for her achy legs.  TYLENOL?  HELLO???? and he is a CML specialist?  Oh, and he refused to sign her request for handicap plates (she can't walk through the parking lot without getting completely out of breath).  He said it is his policy not to sign such things!  What a jerk.  It's scarey out there, folks.  And that is her last trip to that guy.  We'll find someone else.  This will be oncologist number 3 coming up!  Thank goodness we go to OHSU for the big stuff!  Thanks for letting me vent!  Sue...fed up in Las Vegas      Yahoo! FareChase - Search multiple travel sites in
 one click.   
		 Yahoo! FareChase - Search multiple travel sites in one click.

 

 





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