Hi Jennifer, Thanks for the welcome. Bone pain in hips and knees, occassional nausea, cramps in legs and feet and pins and needles or numbness in feet and fingers at very odd times (for example when I'm walking) seem to be the main ones. How did you cope with the diagnosis? It still in many ways doesn't seem real. I've made all these adjustments in my life so on the one hand it seems I have accepted it and just tried to incorporate it in my life and moved on but I know deep down it feels like this is all happening to someone else. I think part of it was I wasn't sick before diagnosis. So it was all such a huge shock for me and everyone around me. I'm positive in myself which is good but there are times it all just seems so unreal. Had my end of 3 months blood tests yesterday and all seems good on that front.
Thanks, Steph --- In [email protected], jennifer bosse <[EMAIL PROTECTED]> wrote: > > Hi there and welcome to the group. I was dx in May 2005 and I can say that tiredness and lack of energy are my biggest complaints. I just try to eat right and I need to work on the exercise part. Just need to find more time in my day I guess. From what I understand, fatigue is something that will probably always be there. It sounds like you are still trying to stay active though, which is good. I am also on 400 mg of Gleevec. Do you have any other side effects? > > Jennifer B > > candidasa72 <[EMAIL PROTECTED]> wrote: > Hi everyone, I'm new to the group and was dignosed with CML Sept 2005. > started Glivec 2 weeks later and have had relatively few side effects > apart from extreme tiredness and lack of energy. Prior to diagnosis > and glivec I was walking 8km a day with my dogs but now I struggle to > do 5km and if I don't have a sleep at lunchtime I feel completely > exhausted by the end of the day. Does anyone else have this side > effect and did it subside? I'm used to being really active but just > find myself drained so easily. I'm on 400mg glivec a day. > > Luckily, touch wood, I haven't had any real problems with cramps apart > from the few odd times but since being diagnosed and starting glivec > I've also been taking a complete magnesium supplement that may have > helped with the cramps. I'm also seeing an acupuncturist who > specialises in blood conditions and herbal medicine. I figure the more > complimentary medicines can only assist and make the whole process > easier. > > > > > > New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com > > Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com > > CML (Chronic Myelogenous Leukemia Support List) > --------------------------------- > Part Of CMLHope.Com > An International Community Of CML Patients > For more information: http://cmlhope.com > > Post Message: [email protected] > Subscribe: [EMAIL PROTECTED] > Unsubscribe: [EMAIL PROTECTED] > Change To No Mail/Web: [EMAIL PROTECTED] > Change To Digest: [EMAIL PROTECTED] > Change To Email: [EMAIL PROTECTED] > List Help: [EMAIL PROTECTED] > CML Group Web Site http://groups.yahoo.com/group/CML > > > > > SPONSORED LINKS > Chronic myelogenous leukemia Leukemia treatment Cml > > --------------------------------- > YAHOO! GROUPS LINKS > > > Visit your group "CML" on the web. > > To unsubscribe from this group, send an email to: > [EMAIL PROTECTED] > > Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service. > > > --------------------------------- > > > > > > > --------------------------------- > Yahoo! Photos > Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. > ------------------------ Yahoo! Groups Sponsor --------------------~--> AIDS has a woman's face. Help women to protect themselves. http://us.click.yahoo.com/VHwV5B/TREMAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
