Steph,
That is funny that you mention pins and needles, because I have just begun to experience this a little and it comes from out of nowhere!!
As far as coping with the diagnosis.....that is still hard sometimes (a lot of the time). At first I was in a state of shock and then a little denial. I thought as everyone did, "how could this happen to me" ? I have two young children (ages 4 and 1) and they are the ones who keep me going!! It is still hard for me to believe that I have CML sometimes because I am able to carry on with my normal routine of work/life, and it hasn't slowed me down. But on the other hand, I know I cannot push myself because I realize that I do have CML and need to take it easy sometimes. I think it is hard for others around me to realize I have it too because I don't look sick!! I am really rambling at this point. Staying positive
helps me a ton and my faith in God that he will pull me through!!
Glad to hear your blood work came out okay!! Jennifer B
candidasa72 <[EMAIL PROTECTED]> wrote:
candidasa72 <[EMAIL PROTECTED]> wrote:
Hi Jennifer,
Thanks for the welcome. Bone pain in hips and knees, occassional
nausea, cramps in legs and feet and pins and needles or numbness in
feet and fingers at very odd times (for example when I'm walking)
seem to be the main ones. How did you cope with the diagnosis? It
still in many ways doesn't seem real. I've made all these
adjustments in my life so on the one hand it seems I have accepted
it and just tried to incorporate it in my life and moved on but I
know deep down it feels like this is all happening to someone else.
I think part of it was I wasn't sick before diagnosis. So it was all
such a huge shock for me and everyone around me. I'm positive in
myself which is good but there are times it all just seems so
unreal. Had my end of 3 months blood tests yesterday and all seems
good on that front.
Thanks,
Steph
--- In [email protected], jennifer bosse <[EMAIL PROTECTED]>
wrote:
>
> Hi there and welcome to the group. I was dx in May 2005 and I can
say that tiredness and lack of energy are my biggest complaints. I
just try to eat right and I need to work on the exercise part. Just
need to find more time in my day I guess. From what I understand,
fatigue is something that will probably always be there. It sounds
like you are still trying to stay active though, which is good. I
am also on 400 mg of Gleevec. Do you have any other side effects?
>
> Jennifer B
>
> candidasa72 <[EMAIL PROTECTED]> wrote:
> Hi everyone, I'm new to the group and was dignosed with CML Sept
2005.
> started Glivec 2 weeks later and have had relatively few side
effects
> apart from extreme tiredness and lack of energy. Prior to
diagnosis
> and glivec I was walking 8km a day with my dogs but now I struggle
to
> do 5km and if I don't have a sleep at lunchtime I feel completely
> exhausted by the end of the day. Does anyone else have this side
> effect and did it subside? I'm used to being really active but
just
> find myself drained so easily. I'm on 400mg glivec a day.
>
> Luckily, touch wood, I haven't had any real problems with cramps
apart
> from the few odd times but since being diagnosed and starting
glivec
> I've also been taking a complete magnesium supplement that may
have
> helped with the cramps. I'm also seeing an acupuncturist who
> specialises in blood conditions and herbal medicine. I figure the
more
> complimentary medicines can only assist and make the whole process
> easier.
>
>
>
>
>
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