I am with you Steph...I am still in Shock. I have done extremely well the first year but this year my PCR came out positive and I am feeling more side effects or symptoms. I was able to ignore it for the most part when I was feeling so well. I kept thinking it was a mistake in the diagnosis. oh well...here I still am. I try to accept it but keep thinking I will have to work till I die in order to pay for the drugs I need.
Take care all. Terri --- In [email protected], "candidasa72" <[EMAIL PROTECTED]> wrote: > > Hi Jennifer, > Thanks for the welcome. Bone pain in hips and knees, occassional > nausea, cramps in legs and feet and pins and needles or numbness in > feet and fingers at very odd times (for example when I'm walking) > seem to be the main ones. How did you cope with the diagnosis? It > still in many ways doesn't seem real. I've made all these > adjustments in my life so on the one hand it seems I have accepted > it and just tried to incorporate it in my life and moved on but I > know deep down it feels like this is all happening to someone else. > I think part of it was I wasn't sick before diagnosis. So it was all > such a huge shock for me and everyone around me. I'm positive in > myself which is good but there are times it all just seems so > unreal. Had my end of 3 months blood tests yesterday and all seems > good on that front. > > Thanks, > Steph > > --- In [email protected], jennifer bosse <[EMAIL PROTECTED]> > wrote: > > > > Hi there and welcome to the group. I was dx in May 2005 and I can > say that tiredness and lack of energy are my biggest complaints. I > just try to eat right and I need to work on the exercise part. Just > need to find more time in my day I guess. From what I understand, > fatigue is something that will probably always be there. It sounds > like you are still trying to stay active though, which is good. I > am also on 400 mg of Gleevec. Do you have any other side effects? > > > > Jennifer B > > > > candidasa72 <[EMAIL PROTECTED]> wrote: > > Hi everyone, I'm new to the group and was dignosed with CML Sept > 2005. > > started Glivec 2 weeks later and have had relatively few side > effects > > apart from extreme tiredness and lack of energy. Prior to > diagnosis > > and glivec I was walking 8km a day with my dogs but now I struggle > to > > do 5km and if I don't have a sleep at lunchtime I feel completely > > exhausted by the end of the day. Does anyone else have this side > > effect and did it subside? I'm used to being really active but > just > > find myself drained so easily. I'm on 400mg glivec a day. > > > > Luckily, touch wood, I haven't had any real problems with cramps > apart > > from the few odd times but since being diagnosed and starting > glivec > > I've also been taking a complete magnesium supplement that may > have > > helped with the cramps. I'm also seeing an acupuncturist who > > specialises in blood conditions and herbal medicine. I figure the > more > > complimentary medicines can only assist and make the whole process > > easier. > > > > > > > > > > > > New! Sign up for local CML support group meetings in your local > community at http://cml.meetup.com > > > > Apply for Commercial Real Estate loans online and submit your deal > to dozens of hungry lenders in just minutes. Loan programs for all > types of business and commercial real estate. 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