Hi Jennifer, Thanks for your encouragement. You've certainly got your hands full with the two young children and CML. I think most of my friends/family have a hard time seeing that I have this as I too have found it really hard to slow down. Workwise, I just get exhausted though as am so used to living on adrenalin and going a million miles an hour to get everything done. My partner keeps urging me to take it more slowly and generaly I only do this when I have run out of steam and literally come to a grinding halt. I am struggling though, with the lack of energy but figure when I have it, I will always use it up. Partner has two young children (5 and 8) and I love being really active with them but there's times when I just know I've pushed it too far. Steph
--- In [email protected], jennifer bosse <[EMAIL PROTECTED]> wrote: > > Steph, > > That is funny that you mention pins and needles, because I have just begun to experience this a little and it comes from out of nowhere!! > > As far as coping with the diagnosis.....that is still hard sometimes (a lot of the time). At first I was in a state of shock and then a little denial. I thought as everyone did, "how could this happen to me" ? I have two young children (ages 4 and 1) and they are the ones who keep me going!! It is still hard for me to believe that I have CML sometimes because I am able to carry on with my normal routine of work/life, and it hasn't slowed me down. But on the other hand, I know I cannot push myself because I realize that I do have CML and need to take it easy sometimes. I think it is hard for others around me to realize I have it too because I don't look sick!! I am really rambling at this point. Staying positive helps me a ton and my faith in God that he will pull me through!! > > Glad to hear your blood work came out okay!! Jennifer B > > candidasa72 <[EMAIL PROTECTED]> wrote: > Hi Jennifer, > Thanks for the welcome. Bone pain in hips and knees, occassional > nausea, cramps in legs and feet and pins and needles or numbness in > feet and fingers at very odd times (for example when I'm walking) > seem to be the main ones. How did you cope with the diagnosis? It > still in many ways doesn't seem real. I've made all these > adjustments in my life so on the one hand it seems I have accepted > it and just tried to incorporate it in my life and moved on but I > know deep down it feels like this is all happening to someone else. > I think part of it was I wasn't sick before diagnosis. So it was all > such a huge shock for me and everyone around me. I'm positive in > myself which is good but there are times it all just seems so > unreal. Had my end of 3 months blood tests yesterday and all seems > good on that front. > > Thanks, > Steph > > --- In [email protected], jennifer bosse <[EMAIL PROTECTED]> > wrote: > > > > Hi there and welcome to the group. I was dx in May 2005 and I can > say that tiredness and lack of energy are my biggest complaints. I > just try to eat right and I need to work on the exercise part. Just > need to find more time in my day I guess. From what I understand, > fatigue is something that will probably always be there. It sounds > like you are still trying to stay active though, which is good. I > am also on 400 mg of Gleevec. Do you have any other side effects? > > > > Jennifer B > > > > candidasa72 <[EMAIL PROTECTED]> wrote: > > Hi everyone, I'm new to the group and was dignosed with CML Sept > 2005. > > started Glivec 2 weeks later and have had relatively few side > effects > > apart from extreme tiredness and lack of energy. Prior to > diagnosis > > and glivec I was walking 8km a day with my dogs but now I struggle > to > > do 5km and if I don't have a sleep at lunchtime I feel completely > > exhausted by the end of the day. Does anyone else have this side > > effect and did it subside? I'm used to being really active but > just > > find myself drained so easily. I'm on 400mg glivec a day. > > > > Luckily, touch wood, I haven't had any real problems with cramps > apart > > from the few odd times but since being diagnosed and starting > glivec > > I've also been taking a complete magnesium supplement that may > have > > helped with the cramps. I'm also seeing an acupuncturist who > > specialises in blood conditions and herbal medicine. I figure the > more > > complimentary medicines can only assist and make the whole process > > easier. > > > > > > > > > > > > New! 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