Hi Susan Thank you for the information I will go & check it out. I am not sure about my pain. I first got achy pain on Interferon. When I changed to Gleevec it improved. Slowly though it began to get worse & worse until I ended up on morpheine. Now that I have stopped the Gleevec I still have pain but it has improved. I still take 6-8 codeine a day & the more active I am the worse the pain gets ( as it always has ). My pain is hard to describe but it usually starts around my rib area & as it gets worse through the day it spreads through my whole body & then my skin will get so sensitive it hurts to be touched. Over the last 2 weeks it has also started in my joints & muscles. I may have to go to some type of specialist to have it investigated further.
I am glad to hear your symptons on dasatinib improved. This morning was day 4 for me & my headache was already much better than the previous days. Take care Lisa >From: "Susan Loewenkamp" <[EMAIL PROTECTED]> >Reply-To: [email protected] >To: <[email protected]> >Subject: [CMLHope] Re: dasatinib >Date: Sun, 3 Sep 2006 14:25:58 -0400 > > >Hi Lisa, > >Did you start taking morphine because of Gleevgec (IM) side effects? If >so, >what were they? Sorry, but I don't read the List as often as I should. I >do take dasatinib (brand name Sprycel). I'm in a clinical trial and take >100 mg /day. I had the same morning headaches as you do but they went away >after about 10 days and never returned. I do have some breathing >problems -- hard to get a deep breath but that has practicaly disappeared, >too. > >As for information about the drug, there are several people on this List >that know a lot more than I do. Or you can go to Jerry's list which is >www.newcmldrug.com. On the Home Page there is a list on the left side and >you'll see BMS discussion. If you click on that it will take you to the >list of people taking Sprycel and you can ask questions there. Lots of >information and you can write directly to Jerry Mayfield on that list with >your questions. Also, Jerry wrote a long diary during his year on the >first >trial at MD Anderson. Lots of information there, too. > >Good luck! > >Susan L >----- Original Message ----- >From: "lisa" <[EMAIL PROTECTED]> >To: "CMLHope" <[email protected]> >Sent: Sunday, September 03, 2006 4:18 AM >Subject: [CMLHope] dasatinib > > > > > > I stopped taking Glivec for approx. 7 weeks. I had alot of aching pain > > & was taking morpheine which I was continually increasing the dose of. > > Since then my pain has improved but it is still quite bad. Over the > > last 2 weeks I have also started getting pain in my joints & muscles > > even though I am not on Glivec.Four days ago I started Dasatinib. The > > only side effect so far is a headache each morning when I wake up. Is > > anyone else on Dasatinib & if so do you have any side effects & what > > information do have about the drug. > > > > > > > > > > > > >> --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
