Hi Lisa, I have never heard of such horrendous pain on IM. I'm so glad you were able to get dasatinib. One Excedrin took away my headaches. You might try that. Although if you're still on morphine it doesn't get any stronger than that! Best of luck and keep us informed. Warm wishes,
Susan L ----- Original Message ----- From: "lisa mcneil" <[EMAIL PROTECTED]> To: <[email protected]> Sent: Sunday, September 03, 2006 11:32 PM Subject: [CMLHope] Re: dasatinib > > Hi Susan > > Thank you for the information I will go & check it out. > I am not sure about my pain. I first got achy pain on Interferon. When I > changed to Gleevec it improved. Slowly though it began to get worse & > worse > until I ended up on morpheine. Now that I have stopped the Gleevec I still > have pain but it has improved. I still take 6-8 codeine a day & the more > active I am the worse the pain gets ( as it always has ). My pain is hard > to > describe but it usually starts around my rib area & as it gets worse > through > the day it spreads through my whole body & then my skin will get so > sensitive it hurts to be touched. Over the last 2 weeks it has also > started > in my joints & muscles. I may have to go to some type of specialist to > have > it investigated further. > > I am glad to hear your symptons on dasatinib improved. This morning was > day > 4 for me & my headache was already much better than the previous days. > > Take care > Lisa > > > >>From: "Susan Loewenkamp" <[EMAIL PROTECTED]> >>Reply-To: [email protected] >>To: <[email protected]> >>Subject: [CMLHope] Re: dasatinib >>Date: Sun, 3 Sep 2006 14:25:58 -0400 >> >> >>Hi Lisa, >> >>Did you start taking morphine because of Gleevgec (IM) side effects? If >>so, >>what were they? Sorry, but I don't read the List as often as I should. I >>do take dasatinib (brand name Sprycel). I'm in a clinical trial and take >>100 mg /day. I had the same morning headaches as you do but they went >>away >>after about 10 days and never returned. I do have some breathing >>problems -- hard to get a deep breath but that has practicaly disappeared, >>too. >> >>As for information about the drug, there are several people on this List >>that know a lot more than I do. Or you can go to Jerry's list which is >>www.newcmldrug.com. On the Home Page there is a list on the left side and >>you'll see BMS discussion. If you click on that it will take you to the >>list of people taking Sprycel and you can ask questions there. Lots of >>information and you can write directly to Jerry Mayfield on that list with >>your questions. Also, Jerry wrote a long diary during his year on the >>first >>trial at MD Anderson. Lots of information there, too. >> >>Good luck! >> >>Susan L >>----- Original Message ----- >>From: "lisa" <[EMAIL PROTECTED]> >>To: "CMLHope" <[email protected]> >>Sent: Sunday, September 03, 2006 4:18 AM >>Subject: [CMLHope] dasatinib >> >> >> > >> > I stopped taking Glivec for approx. 7 weeks. I had alot of aching pain >> > & was taking morpheine which I was continually increasing the dose of. >> > Since then my pain has improved but it is still quite bad. Over the >> > last 2 weeks I have also started getting pain in my joints & muscles >> > even though I am not on Glivec.Four days ago I started Dasatinib. The >> > only side effect so far is a headache each morning when I wake up. Is >> > anyone else on Dasatinib & if so do you have any side effects & what >> > information do have about the drug. >> > >> > >> > > >> > >> >> >> >>> > > > > > > --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
