Hi Ruth and very good message.
Thanks.
We all need that uplifting.
Yes,I'm sure we all get down in the dumps over the horrible CML,(I know  I 
do) but we are all WARRIORS and as "K" says, "we ain't finished  yet".
Who knows when the cure will come; maybe today! Let us all pray for all who  
are sick with any cancer; it is no fun!.and for a cure any day now.
Blessings,
Jeanie<3
 
In a message dated 4/14/2008 9:46:55 P.M. Eastern Daylight Time,  
[EMAIL PROTECTED] writes:

To  All

It's been a long time since I posted--a sign that I am
feeling  "normal" now that I am 8 years from my cml
diagnosis. I still subscribe to  the lists and enjoy seeing
the names of the oldies and "meeting" the  newbies.

I was diagnosed in the Spring of 2000 at age 57; had a  mini
sct that failed to bring remission; started Gleevec in
November  2000; reached remission in September 2001. It took
till my second year of  remission to feel true relief. After
reaching remission I still worried  "What if it comes back?"
I always thought this at bedtime & then had  trouble falling
asleep (even though I took ativan & ambien for a year).  Then
one night--for whatever reason--when I asked myself that
same  question, the answer was "If it comes back they'll do
something about  it."

And so they have for those who cannot respond to Gleevec.
Who  could have imagined that the research would produce more
options for  treatment and better outcomes for sct's?

The list was a lifeline for me  in the beginning of my
illness. And these many years later it remains a  source of
comfort and encouragement. No one needs to suffer in  silence
or be scared all their waking hours.

My anniversary  celebration: The  Spring of 2001 I began
marking my diagnosis by  passing out carnations to family and
friends, to vendors at the Farmers'  Market, to the women at
the coffee shop & at the bookstore where I get  my NY Times.
It makes us all happy & grateful that we've all  marked
another year. And it's a joy for me.

I would love to hear  from the first Spring Fling group and
from the Niagara Falls group. If any  one of you is reading
this, please write me at    [EMAIL PROTECTED]

I hope that this note will be a source of hope for  those not
in remission and a confirmation for those who are.  Please
withhold any praise for me--I did what I was told & was
lucky  that the chemistry worked for me. There were lots of
times I didn't have a  great attitude & I can still be my
gloomy self more than several days a  year. I probably
shouldn't end with this sentence, but that's my  reality.
Some people share that reality and some don't. But we are
all  joined by adversity and understand each others'
frustrations and fears,  sorrows and joys. We are in
community. And that is a wondrous  thing.

My very best regards to those of you who know and to  those
who don't

Ruth Marcon
Allentow, PA


 



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