Suzzie, I am so sorry you are suffering from the dreaded side effects of gleevec. I did too and they were cyclic and increased in severity with time. I took a break ( with my oncologist and Dr. Druker's approval) and started back on 300mg. I did that for a year and still, they returned and were intense. The worst one was fluid retention ( not the kind that makes your feet swell, but the kind in your tissue that makes your legs and arms hard as wood) and joint effusion. The chonic pain was so bad. I finally switched to Tasigna. I have been on that since Jan. 2008. I can't tell you how happy I am. I started aty 800 mg and the side effects were horrible. I went down to 400 and am doing SOOOOOO well on it. I have and continue to maintain PCRU since my 9 month anniversary. I plan to work until I am 65 God willing. I am 57 and love teaching. So we will see what happens. So far, so good. I would encourage anyone to consider tasigna as an alternative drug because of intolerability. It is heaven! Be well Barb DX 5-5-02 Age 52 Gleevec 400 mg 6-11-02 - 2-15-06Break 2-25-06 to 5-1-06 Gleevec 300 mg 5-1-06-12-07 Tasigna 800 mg 12-26-07 - 1-10-08 Tasigna 400 mg 1-20-08 - present PCRU 3-17-03 to present
On Aug 22, 12:22 pm, Suzzie <[EMAIL PROTECTED]> wrote: > This is a message for everyone. How many of you had to stop work > because of the side effects of Gleevec, plus the depression etc. > I myself had to stop working, and people do not understand what your > going through if your doing well on your medication. > I am just curious how many besides me, just could not handle working > anymore. --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
