Hi Judy, It's wonderful to hear that you're doing well after all these years of fighting our common foe! I am sorry to hear that you have some other obstacles in the way of your being able to completely enjoy life with out so much worry. I was Dxed in 1997 and my zero club # is 461. I've been on Gleevec since it was approved by the US food and Drug. In remission since 2002! Last BMA I was .03! Biggest problem is the cramping and the eye bleeds! I am more than happy to live with them and stay on the green side of the grass!!! All my best to you! Jim Rodeghier --- On Sun, 1/25/09, Warren <[email protected]> wrote:
From: Warren <[email protected]> Subject: [CMLHope] Update To: "[email protected]" <[email protected]> Date: Sunday, January 25, 2009, 10:38 AM Hi Everyone, It has been a very long time since I posted. For those who don’t know me and all the rest, I will bring you up to date. I am somewhere between #149 and #156 in Zavie’s club. I was dx in 1999 and put on interferon and ARAC. I had bad reactions and joined the intolerant STI571 trial at Dana Farber. I continued my treatment there until we moved from PA to FL. I was also in the vaccine trial in 2003 at UCONN. When we got to FL, I was very lucky to find a wonderful onc. He decided he wanted my bone marrow tests run on a fresh sample so he sends me to MDACC. I remain on 400mg of Gleevec. I just got my last bma results from Dec. and I am at .02. The lowest I have been ever is .01. It kind of bounces around. I will go back to MDACC in June and if everything stays stable I will only need to go back once a year. It seems so hard to realize that when I was dx I had a prognosis of 3-5 years if I was lucky. I watched many brave warriors lose their battles and am so pleased it is not so common now. My biggest problem now is that they found I have BRAC2. I had my ovaries removed last spring and now I have an appointment with the breast surgeon. All of my docs are insisting on a double mastectomy. The most interesting thing about this is it is related to melanoma, which explains why my first on was in my armpit where the sun never shone. Moving to Fl was a very good decision for us. We are very active and have found a nice group of friends. It is a wonderful blessing to not have one’s life ruled by illness. Best to all, Judy L (cross posted) --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
