Danial, Just wanted to change a typo I made. My bcr-abl is .001 not 00.1. Barely traceable...my doctor says you can't get much better than .001
Lenda ----- Original Message ----- From: [email protected] To: [email protected] Sent: Sunday, January 24, 2010 9:31:02 AM GMT -06:00 US/Canada Central Subject: Re: [CMLHope] Update Richard, The same thing happened to me and my onc immediately put me on Sprycel (dasatinib) 140 mg. The 140mg was too much for me. It gave me horrible headaches, so they lowered the dosage to 100mg and my bcr-abl has remained at 00.1 and I have been fine now for over 2 years. It does have it's side effects, but they were easier on me than the Gleevec. Good luck and I hope your doc does not wait too long to switch you. Lenda ----- Original Message ----- From: "Richard H" <[email protected]> To: "CMLHope" <[email protected]> Sent: Saturday, January 23, 2010 11:36:12 PM GMT -06:00 US/Canada Central Subject: [CMLHope] Update I just received the results of my Dec. QT-PCR test. It shows that my BCR-ABL counts continue to slowly rise. We are now trying to decide at what point I will resume Gleevec. My ONC is treating other CML patients with various other protocols. He is seeing good results with all and thinks that since I am on the first protocol that we should have all the known side effects on the table to work with. If my worst problems reappear then we will move to something else. I have risen from .0001 to .0028 since Jan. 2009. He has set a maximum of . 01 but is seriously considering lowering it. We will redo the QT-PCR in Apr and re-evaluate at that time. Richard H. dxd 2/03 400mg Gleevec 3/03 CCR 11/03 Zavies zero club #530 Transfusions Dec. 06-May 07 Gleevec Vacation 6/07-1/08 Gleevec 1/08-6/08 Transfusions 6/08-11/08 Gleevec Vacation 6/08-Present -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
