Kelly, My shortness of breath was similar to yours. At night I would awaken to shortness of breath and have to sit up until I could catch my breath. Walking any distance was miserable in that I could not breathe. So my hematologist stopped the Sprycel and found a laboratory that would do the testing. That was over 2 weeks ago and hopefully he will hve the results this Friday. It is good to know that the dosage may be able to be reduced and not cuase the shortness of air. Gleevac caused eye bleeds (bilaterally) after 16 months of 400mg daily so it was stopped, then Sprycel started. Thanks for responding. Mags
--- On Mon, 2/1/10, kellyelise <[email protected]> wrote: From: kellyelise <[email protected]> Subject: [CMLHope] Re: Update To: "CMLHope" <[email protected]> Date: Monday, February 1, 2010, 10:58 AM Hi Maggy, I was on 140 mg of Sprycel and suffered such severe shortness of breath I could barely gasp out a complete sentence. I was then put on 100 mg a day and now I only get occasional shortness of breath which I noticed to correspond with "big" meals. I now eat small meals throughout the day and suffer no consequences. I also lost 46 lbs. which really helped, too. (Every time I check the scales, I've lost more weight). Don't ask me how I lost the weight, I really don't know other than by possibly eating small meals. (Wow! That's the size of a 3rd grader!) I avoid too much sodium and fatty foods. Fatty foods seem to aggravate side effects. I quit taking the Sprycel with meals - that helped. I also take loratadine because of a constant runny nose that starts around an hour or so after taking the Sprycel. I finally kicked that miserable cough that plagued me every night either through it resolving on its own or by utilizing the above-mentioned measures. A small meal consists of a bowl of cereal or a cup of fruit with a piece of cheese for breakfast or lunch. Smaller portions at dinner. I also drink a lot of green tea with honey. Boy, do I feel better! I hope this helps. Take care! Kelly On Jan 24, 8:26 pm, "[email protected]" <[email protected]> wrote: > For those of you on Sprycel have you experienced severe shortness of breath? -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
