Thank you, Richard for explaining the transfusions. I should have thought of anemia, which I know we have to watch for with Gleevec. Keep us posted as to your treatment. I will keep you in my daily prayers.
God Bless You, Sandy ________________________________ From: Richard H <[email protected]> To: CMLHope <[email protected]> Sent: Fri, March 5, 2010 10:39:45 AM Subject: [CMLHope] Re: Update I have Iron Deficient Anemia and my RBC dropped to 7.9 which my ONC wanted me to have transfusions for. I know this was caused from Gleevec. During this period of 6 months I was taking 400mg Gleevec and I needed 2 units of platlets every 3 weeks to keep my RBC levels acceptable. In November I stopped taking Gleevec and my RBC raised to 11.-11.9 and has remained there. I am currently waiting for the next Q-PCR in April to see if I will have to return some sort of treatment. Richard H. On Mar 4, 7:28 pm, Sandy Byrd <[email protected]> wrote: > Dear Richard, > > What do notations "Transfusions Dec. 06-May 07 & Transfusions 6/08-11/08" > mean? > > God Bless, > > Sandy > > ________________________________ > From: Richard H <[email protected]> > To: CMLHope <[email protected]> > Sent: Sun, January 24, 2010 12:36:12 AM > Subject: [CMLHope] Update > > I just received the results of my Dec. QT-PCR test. It shows that my > BCR-ABL counts continue to slowly rise. We are now trying to decide > at what point I will resume Gleevec. My ONC is treating other CML > patients with various other protocols. He is seeing good results with > all and thinks that since I am on the first protocol that we should > have all the known side effects on the table to work with. If my > worst problems reappear then we will move to something else. I have > risen from .0001 to .0028 since Jan. 2009. He has set a maximum of . > 01 but is seriously considering lowering it. We will redo the QT-PCR > in Apr and re-evaluate at that time. > > Richard H. > dxd 2/03 > 400mg Gleevec 3/03 > CCR 11/03 > Zavies zero club #530 > Transfusions Dec. 06-May 07 > Gleevec Vacation 6/07-1/08 > Gleevec 1/08-6/08 > Transfusions 6/08-11/08 > Gleevec Vacation 6/08-Present > > -- > [CMLHope] > A support group ofhttp://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group athttp://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
