Zavier:
To be in your Zero Club do you need to be in Major Molecular
Remission? If it is a CCR that would make me a member and a very
happy person!
Marcie
Sent from my iPhone
On Feb 10, 2011, at 11:18 PM, Zavie Miller <[email protected]> wrote:
First
Y A H O O O !!! Y II P P E E !!!
Number 1378 in the Zero Club
Zavie
I assign a Zero Club number once you reach CCR. I don't recall
assigning you one in the past, so enjoy it.
PCR values tend to fluctuate. It takes 3 consecutive results to
establish a trend. I would only worry if there as a 1 log or greater
change and then ask to be retested.
It looks like your doctor is right on top of it. I can say don't
worry, but if I had a 1 log increase I would ask to be retested.
Zavie
Zavie Miller (age 72)
Ottawa, Canada, K2G 3X3
dxd AUG/99
INF OCT/99 to FEB/00, CHF
No meds FEB/00 to JAN/01
Gleevec since MAR/27/01 (400 mg)
CCR SEP/01. #102 in Zero Club
2.8 log reduction Sep/05
3.0 log reduction Jan/06
2.9 log reduction Feb/07
3.6 log reduction Apr/08
3.6 log reduction Sep/08
3.7 log reduction Jan/09
3.8 log reduction May/09
3.8 log reduction Aug/09
4.0 log reduction Dec/09
4.4 log reduction
e-mail: [email protected]
On Thu, Feb 10, 2011 at 8:18 PM, daniel <[email protected]>
wrote:
hi all,
i have had cml for about 3.5 years, and was originally on gleevec, but
transferred to tasigna about a year ago due to fatigue issues with
gleevec. i obtained ccr in the first year and since then my pcr has
been stable, between a 2 and 3 log reduction. in the my previous
quarterly visit my pcr had dropped to 3 log reduction for the first
time (good news). but at my most recent visit it is back up to around
the level it has been around for the past 2 years (bad news). my dr
and i are concerned to see such an increase and i have a follow-up pcr
in 5 weeks to see if it is still rising.
my question is have other experienced similar increases? is it common
to experience temporary fluctuation or does such a change usually
indicate loss of response? obviously, i am very concerned and going to
follow up regardless, but would be good to get a sense of others'
experiences.
thanks,
daniel
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