Gosh I must have just arrived home from the Hospital when I wrote that reply to Suzieq... I re-read it and could not understand what I said.. anyway the word is Rigors here is a web site explaining what I was trying to say
http://www.patient.co.uk/doctor/Rigors.htm when I get 75 mgs Benadryl IV my tongue and brain go to sleep and I get that amount with every infusions sorry.. SkipD ----- Original Message ---- From: Skip Duffie <[email protected]> To: [email protected] Sent: Mon, March 7, 2011 8:39:55 PM Subject: Re: [CMLHope] Re: CHILLLLLLS~~~~~ Suzieq When you first had the heavy shakes did any of the nurses call them RIKERS or something like that .. every time I had them with Nilotinib they called them rikers and nothing in the whole hospital would some them until what ever meds they gave me I have look for a word like that but I must have heard wrong or spelled it wrong cannot find it When I had them they had to put locks on the bed or I would have been down from the 8th floor to the 1st. Heating pads, electric blankets at home or heated blankets at the hospital nothing would calm except time and some drugs It is only with the heart one see rightly what is essential is invisible to the eye (little prince) SkipD ----- Original Message ---- From: Suzieq <[email protected]> To: CMLHope <[email protected]> Sent: Mon, March 7, 2011 6:27:08 PM Subject: [CMLHope] Re: CHILLLLLLS~~~~~ Angie: Yep, very, very cold at times right after starting the Gleevec 7 years ago last month. My husband thought I was nuts......my teeth would be chattering and I would cover up to my chin. I finally learned to just get the heating pad which helped the most. I had seen others listed here in our group in the beginning who claimed the same thing....and how they wore heavy sweat pants and shirts even in the summer. :):) Even now, there are times when I cannot get warm & will go get in bed and cover up with the heating pad on. But, never those deep bone chillin' chills like in the beginning. & the awful fatigue.......it would hit like a wall and I would just have to go lie down on the sofa. That was something I had a very hard time explaining to people. No one understood, even my husband at times. I still get tired at times, but it's nothing like it was in the beginning. Thank you, Lord. Keep Looking Up, Suzieq -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
