Hi Marty and yes, I have been thinking about getting off caffeine but my one cup in the morning is my wake up call. I also have a cup of tea at noon. I don't drink sodas or anything else with caffeine, but do enjoy an occasional piece of dark chocolate. I think I will see a card soon. My doctor does the EKGs and etc. but all he said was I had a skipped heartbeat. My mom had to have a pace maker in her 70s so it could run in the family. Blessings and thanks, Jeanie<3 In a message dated 3/30/2011 11:19:33 A.M. Pacific Daylight Time, [email protected] writes:
Hi Jeanie, Having even one cup of caffeinated coffee can trigger the PVC's, and if that is what you have you don't really have to worry about them. However, I would still speak with your cardiologist about this. That is if you even have them. The first sign that I had them was way back while I was attending a lecture about electro magnetic fields, and had a strong cup of coffee so that I could stay wide awake. Unfortunately, I became so frightened that I had to leave and check myself into the nearest hospital. They ran tests and came up with that I was having PVC's and I have had them ever since. I recently finished up with a six week course of stem cell therapy and that is really when those PVC's became really bad. Since finishing the therapy those PVC's have settled down again. Remember anything that contains even a small amount of Caffeine can set them off, not just coffee. I wish you health and happiness. 18's (Life) and may you be blessed by GOD You do know that what your doing here is helping a lot of people. Marty On Tue, Mar 29, 2011 at 5:18 PM, <[email protected]_ (mailto:[email protected]) > wrote: Hi Marty, I do drink a cup of coffee in the morning but that is all. It is so strange; I feel the heartbeat all the time but don't really notice it when I am busy. My doctor says my heart skips a beat. Is this what you are talking about? Is there anything they can do about it? I just got back off a cruise and I didn't feel the beat at all because of the ships movement. funny I will check it out. I also like to sprinkle cayenne pepper on my food. Thanks again, Jeanie<3 In a message dated 3/16/2011 7:49:17 P.M. Pacific Daylight Time, [email protected]_ (mailto:[email protected]) writes: Hi Jeanie, Well at lease those chills aren'r bothering you now. As far as the skipped beat I still think it is those PVC Premature Ventricular Contractions. Maybe you might want to try something and see what happens. Remember that PVC's are usually benign so it wouldn't hurt you to try drinking about two or even three cups of coffee (caffinated) and then see if those missed heart beats come on after about fifteen or twenty minutes. If they do then that is probably your problem. Sometimes if it is not happening when you get the EKG then of course it won't show up. If not then go see a Cardiologist and let him/her check you out, but I still think it is those PVC's. This also happens to me as well and sometimes I just can't sleep because of it. Good luck, Marty On Wed, Mar 16, 2011 at 6:27 PM, <[email protected]_ (mailto:[email protected]) > wrote: Hi Marty and thanks, My doctor said I my heart skips a beat and he has given me EKGs and can find nothing really wrong. I only drink a small cup of coffee at BK and no other caffeine during the day. I don't have the chills anymore, just when I first started on Gleevec. This heart pounding is terrible as it keeps me awake at night. My doctor says it could be stress, and I guess any cancer patient has a fair amount of stress. Thanks for your encouraging words. Blessings, Jeanie<3 In a message dated 3/15/2011 6:52:18 P.M. Pacific Daylight Time, [email protected]_ (mailto:[email protected]) writes: Hi Jeanie, I'm sorry to hear about those chills that you have been getting. I would also get them but I wasn't on any of the drugs just a bone marrow transplant. Even today I still get the chills and I live in South Florida. You also mention about the heart pounding in your chest. I also have this and I found out that it is called PVC, and by me cutting back on anything containing Caffeine really helps me. If you drink coffee of any sodas with Caffeine in them then just stop drinking them. Also if you like chocolate then you need to cut back on it as well. Jeanie I hope that you start feeling better, and may you be continually be blessed by GOD Marty On Tue, Mar 15, 2011 at 2:43 PM, <[email protected]_ (mailto:[email protected]) > wrote: Hi Angie, I had a lot of the chills and fever when I was first dx. I would just take some pain reliever and fever reduces and try to get through them. Those first few weeks were a nightmare for sure. Now on Sprycel, I get really hot; my face turns beet red and it's hard to get cooled down. It happens a lot when I am on the computer. I can also feel my heart pounding in my chest all the time. This has been with me even before I was dx in 2004. It has never gone away and keeps me awake at night. Blessings, Jeanie<3 In a message dated 3/5/2011 9:46:40 P.M. Pacific Daylight Time, [email protected]_ (mailto:[email protected]) writes: Your mention of deep freeze chills really caught my eye. I had 3 episodes of that before my diagnosis (I was diagnosed with CML in 2000). I would shake with cold, and my skin HURT as though I was trapped in a deep freeze. Neither hot tea, nor blankets could get me warm. I told my family doctor and he considered my age (52-53) and said it was the reverse of hot flashes! Sometimes I would get steaming hot, and sometimes freezing cold. I sure wonder where he dreamed up THAT theory from! A few months later I was diagnosed with CML. Funny, I have not heard anyone mention those deep painful chills before. I haven't had such an episode in 8 years now. Angie in Canada What lies behind us and what lies before us are tiny matters compared to what lies within us.... Angie --- On Sat, 3/5/11, Suzieq <[email protected]_ (mailto:[email protected]) > wrote: Hi Jeanie: Good to hear from you. Ya, I notice that the symptoms come and go. Thank the Lord for that. I remember how that in the beginning, I had those deep freeze type chills.......not any more. That was probably during the first six to eight months. -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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