Hi Jeanie, Sometimes what you eat or drink in the morning or during the day may be with you at night. If I eat Italion food for lunch and when I go to sleep at night I get the most terrible heart burn you can imagine.
I would be interested to hear what happened to you when you don't use anything that contains any Caffiene for a few days. Let me know. *18's* Marty On Tue, Apr 5, 2011 at 4:16 PM, <[email protected]> wrote: > Hi Marty and will do; it's funny they bother me the most at night when I > haven't eaten or drunk anything. > I make it a habit not to ear or drink anything a couple of hours before > bedtime. > Thanks > Jeanie<3 > > In a message dated 3/31/2011 4:36:07 P.M. Pacific Daylight Time, > [email protected] writes: > > Hi again Jeanie, > > So why not have that cup of coffee in the morning, just try to make it > decaffinated. Maybe you might want to try it for several days and then see > if you stop getting those skipped heart beats. If they stop or get better > then you will know for sure that is what's causing them. > > Just a suggestion maybe worth while. > > *18's* > > Marty > > On Thu, Mar 31, 2011 at 5:11 PM, <[email protected]> wrote: > >> Hi Marty and yes, I have been thinking about getting off caffeine but my >> one cup in the morning is my wake up call. I also have a cup of tea at >> noon. >> I don't drink sodas or anything else with caffeine, but do enjoy an >> occasional piece of dark chocolate. I think I will see a card soon. My >> doctor does the EKGs and etc. but all he said was I had a skipped heartbeat. >> My mom had to have a pace maker in her 70s so it could run in the family. >> Blessings and thanks, >> Jeanie<3 >> >> In a message dated 3/30/2011 11:19:33 A.M. Pacific Daylight Time, >> [email protected] writes: >> >> Hi Jeanie, >> >> Having even one cup of caffeinated coffee can trigger the PVC's, and if >> that is what you have you don't really have to worry about them. However, I >> would still speak with your cardiologist about this. That is if you even >> have them. The first sign that I had them was way back while I was attending >> a lecture about electro magnetic fields, and had a strong cup of coffee so >> that I could stay wide awake. Unfortunately, I became so frightened that I >> had to leave and check myself into the nearest hospital. They ran tests and >> came up with that I was having PVC's and I have had them ever since. >> >> I recently finished up with a six week course of stem cell therapy and >> that is really when those PVC's became really bad. Since finishing the >> therapy those PVC's have settled down again. >> >> Remember anything that contains even a small amount of Caffeine can set >> them off, not just coffee. >> >> I wish you health and happiness. >> >> *18's* (Life) and may you be blessed by GOD >> >> You do know that what your doing here is helping a lot of people. >> >> Marty >> >> On Tue, Mar 29, 2011 at 5:18 PM, <[email protected]> wrote: >> >>> Hi Marty, I do drink a cup of coffee in the morning but that is all. >>> It is so strange; I feel the heartbeat all the time but don't really notice >>> it when I am busy. My doctor says my heart skips a beat. Is this what you >>> are talking about? Is there anything they can do about it? I just got >>> back off a cruise and I didn't feel the beat at all because of the ships >>> movement. funny >>> I will check it out. >>> I also like to sprinkle cayenne pepper on my food. >>> Thanks again, >>> Jeanie<3 >>> >>> In a message dated 3/16/2011 7:49:17 P.M. Pacific Daylight Time, >>> [email protected] writes: >>> >>> Hi Jeanie, >>> >>> Well at lease those chills aren'r bothering you now. As far as the >>> skipped beat I still think it is those PVC Premature Ventricular >>> Contractions. Maybe you might want to try something and see what happens. >>> Remember that PVC's are usually benign so it wouldn't hurt you to try >>> drinking about two or even three cups of coffee (caffinated) and then see if >>> those missed heart beats come on after about fifteen or twenty minutes. If >>> they do then that is probably your problem. Sometimes if it is not happening >>> when you get the EKG then of course it won't show up. >>> >>> If not then go see a Cardiologist and let him/her check you out, but I >>> still think it is those PVC's. This also happens to me as well and sometimes >>> I just can't sleep because of it. >>> >>> Good luck, >>> >>> Marty >>> >>> On Wed, Mar 16, 2011 at 6:27 PM, <[email protected]> wrote: >>> >>>> Hi Marty and thanks, >>>> My doctor said I my heart skips a beat and he has given me EKGs and can >>>> find nothing really wrong. I only drink a small cup of coffee at BK and no >>>> other caffeine during the day. I don't have the chills anymore, just when >>>> I >>>> first started on Gleevec. >>>> This heart pounding is terrible as it keeps me awake at night. >>>> My doctor says it could be stress, and I guess any cancer patient has a >>>> fair amount of stress. >>>> Thanks for your encouraging words. >>>> Blessings, >>>> Jeanie<3 >>>> >>>> In a message dated 3/15/2011 6:52:18 P.M. Pacific Daylight Time, >>>> [email protected] writes: >>>> >>>> Hi Jeanie, >>>> >>>> I'm sorry to hear about those chills that you have been getting. I would >>>> also get them but I wasn't on any of the drugs just a bone marrow >>>> transplant. Even today I still get the chills and I live in South Florida. >>>> >>>> You also mention about the heart pounding in your chest. I also have >>>> this and I found out that it is called PVC, and by me cutting back on >>>> anything containing Caffeine really helps me. If you drink coffee of any >>>> sodas with Caffeine in them then just stop drinking them. Also if you like >>>> chocolate then you need to cut back on it as well. >>>> >>>> Jeanie I hope that you start feeling better, and may you be continually >>>> be blessed by GOD >>>> >>>> Marty >>>> >>>> On Tue, Mar 15, 2011 at 2:43 PM, <[email protected]> wrote: >>>> >>>>> Hi Angie, I had a lot of the chills and fever when I was first dx. I >>>>> would just take some pain reliever and fever reduces and try to get >>>>> through >>>>> them. Those first few weeks were a nightmare for sure. >>>>> Now on Sprycel, I get really hot; my face turns beet red and it's hard >>>>> to get cooled down. It happens a lot when I am on the computer. >>>>> I can also feel my heart pounding in my chest all the time. This has >>>>> been with me even before I was dx in 2004. It has never gone away and >>>>> keeps >>>>> me awake at night. >>>>> Blessings, Jeanie<3 >>>>> >>>>> In a message dated 3/5/2011 9:46:40 P.M. Pacific Daylight Time, >>>>> [email protected] writes: >>>>> >>>>> Your mention of deep freeze chills really caught my eye. >>>>> I had 3 episodes of that before my diagnosis (I was diagnosed with CML >>>>> in 2000). I would shake with cold, and my skin HURT as though I was >>>>> trapped >>>>> in a deep freeze. Neither hot tea, nor blankets could get me warm. >>>>> I told my family doctor and he considered my age (52-53) and said it >>>>> was the reverse of hot flashes! Sometimes I would get steaming hot, and >>>>> sometimes freezing cold. I sure wonder where he dreamed up THAT theory >>>>> from! >>>>> A few months later I was diagnosed with CML. Funny, I have not heard >>>>> anyone >>>>> mention those deep painful chills before. I haven't had such an episode >>>>> in 8 >>>>> years now. >>>>> Angie in Canada >>>>> >>>>> What lies behind us and what lies before us are tiny matters compared >>>>> to what lies within us.... >>>>> Angie >>>>> >>>>> --- On *Sat, 3/5/11, Suzieq <[email protected]>* wrote: >>>>> >>>>> >>>>> >>>>> Hi Jeanie: >>>>> >>>>> Good to hear from you. Ya, I notice that the symptoms come and go. >>>>> Thank the Lord for that. I remember how that in the beginning, I had >>>>> those deep freeze type chills.......not any more. That was probably >>>>> during the first six to eight months. >>>>> >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google >>>>> Groups "CMLHope" group. >>>>> To post to this group, send email to [email protected] >>>>> To unsubscribe from this group, send email to >>>>> [email protected] >>>>> For more options, visit this group at >>>>> http://groups.google.com/group/CMLHope >>>>> >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google >>>>> Groups "CMLHope" group. >>>>> To post to this group, send email to [email protected] >>>>> To unsubscribe from this group, send email to >>>>> [email protected] >>>>> For more options, visit this group at >>>>> http://groups.google.com/group/CMLHope >>>> >>>> >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google >>>> Groups "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google >>>> Groups "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> >>> >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >> >> >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope > > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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