HI Marcie,
I had the eye surgery before I had CML, but I am so glad that I had it. Not
only can I see better, I 'look" better!
lol

Michele

On Mon, Jul 25, 2011 at 8:29 AM, <[email protected]> wrote:

> Hi Victoria:
>
> Yes, I've had tremendous hair thinning.  My doctor did not think it was
> Gleevec and for quite a bit, I believed that was correct.  My mother is one
> of seven girls and all of her sisters have hair that thinned as they aged.
> But I also noticed the eyebrows, too.  Hair loss is a side effect of Gleevec
> that some people experience.  I checked with my insurance carrier and if I
> wanted to get a wig, they would reimburse me $300.  I've cut my hair very
> short, got a cute inexpensive wig for bad hair days and moved on.  Just
> happy to be here and glad that it isn't worse.
>
> Has anyone had surgery while on Gleevec?  One of the other things inherited
> from my mother's side of the family is drooping eyelids.  My eye doctor gave
> me a field vision, test which I failed, and sent me to a plastic surgeon
> with a recommendation for an eyelid lift.  The surgeon is someone I have
> known for 35 years, Chief at Johns Hopkins, and since I am in remission and
> bloodwork has been good, I am scheduled for this procedure on 8/23.  I have
> my 3 month FISH and BCR-ABL on Friday and the outcome of that will determine
> whether or not surgery takes place.  Just wondering is it worth the risk
> when I have this underlying illness.  The doctors seem to feel that it will
> be perfectly fine.
>
> I would love to hear some feedback and hope that you, Victoria, find some
> comfort in knowing that you are not alone in going through this issue.
>
> Marcie
>
>
> -----Original Message-----
> From: Victoria Reiter <[email protected]>
> To: CMLHope <[email protected]>
> Sent: Mon, Jul 25, 2011 8:39 am
> Subject: [CMLHope] Gleevec side effects
>
>  Along with all the other bothersome, uncomfortable and ugly side effects,
> has anyone else lost hair from the eyebrows?  My hair is thinning up front,
> with small hairs tryng to grow in but not getting much longer than two and a
> half inches.  This is bad enough for a woman but I've also lost hair from my
> eyebrows and have to "fill in" with an eyebrow pencil which never looks
> natural.  If anyone has a fix for the hair loss, I'd be very glad to hear
> it.
> Victoria
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