Thank you for in info.   I will check it  out.   Greenie
 
 
In a message dated 7/25/2011 6:52:19 P.M. Pacific Daylight Time,  
[email protected] writes:

Greenie:


You should see an eye doctor about the lids.  If the doctor thinks  it is 
bad and obstructs your vision, they will set you up for a field vision  test. 
If you fail that, as I did, the doctor may certify you for surgery which  
is often covered by insurance. Marcie 

Sent from my iPhone

On Jul 25, 2011, at 9:06 PM, [email protected]_ (mailto:[email protected])  
wrote:





The under eye puffiness I where semi dark sun glasses,  it's top lips that 
are the problem.  Keep in touch.  My wife  Love's my under eye puffiness.  
(smile)  And thanks,   greenie
 
 
In a message dated 7/25/2011 11:39:42 A.M. Pacific Daylight Time, 
[email protected]_ (mailto:[email protected])  writes:

Hi Greenie:
 
Will do.  Everyone says it will make a huge difference, although  it won't 
help with the undereye puffiness that I occasionally get from  Gleevec.





-----Original  Message-----
From: Myvety2k <[email protected]_ (mailto:[email protected]) >
To: cmlhope  <[email protected]_ (mailto:[email protected]) >
Sent:  Mon, Jul 25, 2011 11:48 am
Subject: Re: [CMLHope] Gleevec side  effects


Hi Marcie,  let me know how surgery goes because I  have the same problem.  
Was thinking of having the same as my lids  are drooping to.     greenie.  
 
 
In a message dated 7/25/2011 8:29:31 A.M. Pacific Daylight Time, 
[email protected]_ (mailto:[email protected])  writes:

Hi Victoria:
 
Yes, I've had tremendous hair thinning.  My doctor did not  think it was 
Gleevec and for quite a bit, I believed that was  correct.  My mother is one 
of seven girls and all of her  sisters have hair that thinned as they aged.  
But I also noticed  the eyebrows, too.  Hair loss is a side effect of 
Gleevec that some  people experience.  I checked with my insurance carrier and 
if 
I  wanted to get a wig, they would reimburse me $300.  I've cut my  hair 
very short, got a cute inexpensive wig for bad hair days and moved  on.  Just 
happy to be here and glad that it isn't worse.
 
Has anyone had surgery while on Gleevec?  One of the other  things 
inherited from my mother's side of the family is drooping  eyelids.  My eye 
doctor 
gave me a field vision, test which I  failed, and sent me to a plastic 
surgeon with a recommendation for an  eyelid lift.  The surgeon is someone I 
have 
known for 35 years,  Chief at Johns Hopkins, and since I am in remission and 
bloodwork has  been good, I am scheduled for this procedure on 8/23.  I 
have my 3  month FISH and BCR-ABL on Friday and the outcome of that will 
determine  whether or not surgery takes place.  Just wondering is it worth the  
risk when I have this underlying illness.  The doctors seem to feel  that it 
will be perfectly fine.
 
I would love to hear some feedback and hope that you, Victoria,  find some 
comfort in knowing that you are not alone in going through  this issue.
 
Marcie




-----Original  Message-----
From: Victoria Reiter <[email protected]_ (mailto:[email protected]) >
To:  CMLHope <[email protected]_ (mailto:[email protected]) >
Sent:  Mon, Jul 25, 2011 8:39 am
Subject: [CMLHope] Gleevec side  effects


Along with all the other bothersome, uncomfortable and ugly  side effects, 
has anyone else lost hair from the  eyebrows?  My hair is thinning up front, 
with small hairs tryng to  grow in but not getting much longer than two and 
a half  inches.  This is bad enough for a woman but I've also lost  hair 
from my eyebrows and have to "fill in" with an eyebrow pencil which  never 
looks natural.  If anyone has a fix for the hair loss, I'd be  very glad to 
hear it.
Victoria

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