Hi Marcie,  let me know how surgery goes because I have  the same problem.  
Was thinking of having the same as my lids are drooping  to.     greenie.  
 
 
In a message dated 7/25/2011 8:29:31 A.M. Pacific Daylight Time,  
[email protected] writes:

Hi Victoria:
 
Yes, I've had tremendous hair thinning.  My doctor did not think it  was 
Gleevec and for quite a bit, I believed that was correct.  My  mother is one 
of seven girls and all of her sisters have hair that  thinned as they aged.  
But I also noticed the eyebrows, too.  Hair  loss is a side effect of 
Gleevec that some people experience.  I checked  with my insurance carrier and 
if 
I wanted to get a wig, they would reimburse  me $300.  I've cut my hair very 
short, got a cute inexpensive wig for bad  hair days and moved on.  Just 
happy to be here and glad that it isn't  worse.
 
Has anyone had surgery while on Gleevec?  One of the other things  
inherited from my mother's side of the family is drooping eyelids.  My  eye 
doctor 
gave me a field vision, test which I failed, and sent me to a  plastic 
surgeon with a recommendation for an eyelid lift.  The surgeon is  someone I 
have 
known for 35 years, Chief at Johns Hopkins, and since I am in  remission and 
bloodwork has been good, I am scheduled for this procedure on  8/23.  I 
have my 3 month FISH and BCR-ABL on Friday and the outcome of  that will 
determine whether or not surgery takes place.  Just wondering  is it worth the 
risk when I have this underlying illness.  The doctors  seem to feel that it 
will be perfectly fine.
 
I would love to hear some feedback and hope that you, Victoria, find some  
comfort in knowing that you are not alone in going through this issue.
 
Marcie




-----Original  Message-----
From: Victoria Reiter <[email protected]>
To:  CMLHope <[email protected]>
Sent: Mon, Jul 25, 2011 8:39  am
Subject: [CMLHope] Gleevec side effects


Along with all the other bothersome, uncomfortable and ugly side  effects, 
has anyone else lost hair from the eyebrows?  My  hair is thinning up front, 
with small hairs tryng to grow in but not getting  much longer than two and 
a half inches.  This is bad enough for  a woman but I've also lost hair 
from my eyebrows and have to "fill in" with an  eyebrow pencil which never 
looks natural.  If anyone has a fix for the  hair loss, I'd be very glad to 
hear 
it.
Victoria

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