I had hair losson the interferon and less on the gleevec. Had stomach hernia surgery a couple of years ago went well I also have the marrow done in the hospital. I have the droppy eye lids when I sleep on my back and I retain water like its going out of style. water bluisters on the legs. even a couple of my toes had to be drained Oh well I guess thats what it tales to live. JUDY
From: LearnToBallroomDanceOnline.com <[email protected]> To: [email protected] Sent: Monday, July 25, 2011 11:38 AM Subject: Re: [CMLHope] Gleevec side effects HI Marcie, I had the eye surgery before I had CML, but I am so glad that I had it. Not only can I see better, I 'look" better! lol Michele On Mon, Jul 25, 2011 at 8:29 AM, <[email protected]> wrote: Hi Victoria: > >Yes, I've had tremendous hair thinning. My doctor did not think it was >Gleevec and for quite a bit, I believed that was correct. My mother is one of >seven girls and all of her sisters have hair that thinned as they aged. But I >also noticed the eyebrows, too. Hair loss is a side effect of Gleevec that >some people experience. I checked with my insurance carrier and if I wanted >to get a wig, they would reimburse me $300. I've cut my hair very short, got >a cute inexpensive wig for bad hair days and moved on. Just happy to be here >and glad that it isn't worse. > >Has anyone had surgery while on Gleevec? One of the other things inherited >from my mother's side of the family is drooping eyelids. My eye doctor gave >me a field vision, test which I failed, and sent me to a plastic surgeon with >a recommendation for an eyelid lift. The surgeon is someone I have known for >35 years, Chief at Johns Hopkins, and since I am in remission and bloodwork >has been good, I am scheduled for this procedure on 8/23. I have my 3 month >FISH and BCR-ABL on Friday and the outcome of that will determine whether or >not surgery takes place. Just wondering is it worth the risk when I have this >underlying illness. The doctors seem to feel that it will be perfectly fine. > >I would love to hear some feedback and hope that you, Victoria, find some >comfort in knowing that you are not alone in going through this issue. > >Marcie > > > >-----Original Message----- >From: Victoria Reiter <[email protected]> >To: CMLHope <[email protected]> >Sent: Mon, Jul 25, 2011 8:39 am >Subject: [CMLHope] Gleevec side effects > > >Along with all the other bothersome, uncomfortable and ugly side effects, has >anyone else lost hair from the eyebrows? My hair is thinning up front, with >small hairs tryng to grow in but not getting much longer than two and a half >inches. This is bad enough for a woman but I've also lost hair from my >eyebrows and have to "fill in" with an eyebrow pencil which never looks >natural. If anyone has a fix for the hair loss, I'd be very glad to hear it. >Victoria-- >[CMLHope] >A support group of http://cmlhope.com >------------------------------------------------- > >You received this message because you are subscribed to the Google Groups >"CMLHope" group. >To post to this group, send email to [email protected] >To unsubscribe from this group, send email to >[email protected] >For more options, visit this group at http://groups.google.com/group/CMLHope >-- >[CMLHope] >A support group of http://cmlhope.com >------------------------------------------------- > >You received this message because you are subscribed to the Google Groups >"CMLHope" group. >To post to this group, send email to [email protected] >To unsubscribe from this group, send email to >[email protected] >For more options, visit this group at http://groups.google.com/group/CMLHope -- [email protected] www.LearntoBallroomDanceOnline.com -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
