Thank you for that information Millie, I don't recall doing any thing to have 
strained any mussels. All I can do is hope I'm not on the same course yours 
took. I sincerely hope you find something that will help you feel better. Jim  

--- On Sun, 5/5/13, C.M. Houtz <[email protected]> wrote:

From: C.M. Houtz <[email protected]>
Subject: Re: [CMLHope]
To: [email protected]
Date: Sunday, May 5, 2013, 11:00 AM



 
 



Hi Jim.....I've had Arthritis for years, but mostly in my legs.  Since 
treating the CML I've gone from walking to a wheel chair most of the time.  
I can still manage with a walker at times, but not for long.  I was on 
Gleevec for years, but after taking 800 mg. a day towards the end, I was moved 
to Tasigna, which after about 3 years put me into remission.  I developed 
Polymiagia during this time which is a type of Arthritis and really hurts my 
arms, neck, etc.  I also have one place on the left side of my back about 
midway that causes so much pain that nothing helps.  I've tried heat, and 
other things, but there isn't much that will take it away.  It even wakes 
me up during the night.  No one can tell me why it's just in that 
area.  You might want to get a sed rate done to see if you have 
Polymiagia.  That's how my Oncologist found it in me.  The down side 
is that they treat it with Prednisone.  I was on 10 mg. of that, but they 
have cut me down to 71/2 mg. and  I can feel the difference.  I can 
not raise my arms without a lot of pain, especially in the left side.  
Thank God I'm right handed.  I'm not saying that the meds caused all of 
this, but think it has made my Arthritis much worse.  I do use a Lidoderm 
12 hour pain patch when the pain gets really bad, but mostly on my left back 
problem.  I'm not sure I've helped at all, but my muscle and bone pain has 
increased so much in the past few years on these drugs.  I know that my 
Oncologist checks me for it every time I see him, so think it is associated 
with 
the drugs we have to take.  I know that he didn't want me on Sprycel 
because of this.  Talk to your doctor and perhaps he can get to the bottom 
of it.  Hope that your pain goes away so that you don't have to deal with 
another thing.....18's to you and many hugs, Millie

  ----- Original Message ----- 
  From: 
  DAWN 
  RODEGHIER 
  To: [email protected] 
  Sent: Sunday, May 05, 2013 10:57 AM
  Subject: [CMLHope] 
  

  
    
    
      
        Hi fellow warriors, I was wondering if I remember correctly that 
        the subject of arthritis has come up regarding those of us on Gleevec 
        and what was said. I'm on Gleevec and have been since it was 
        approved in the states.  
         
        About 6 weeks ago I started having medium to severe back 
        pain in the mussels that are next to my shoulder blades toward the 
        center of my back. I haven't done any heavy lifting or such it doesn't 
        seem to want to go away. Has any one experienced any 
        problems like this and what was done to get rid of it. desperately 
        seeking ideas to help stop it? 
         
        Thanks for any ideas and 18s to you all!  
    Jim 
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