Hi Marcie, Glad to hear from you. I am with you on hoping you can reduce to 400 mg of the gleevec. I sure do relate to memory loss and brain fog myself. I've been off gleevec for six years now and still claim it's gleevec that did it, but who knows??? I'm 62 and not the sharpest pencil in the box anymore.
My FISH results from a month ago showed 17.7, so I thought I better get back on meds. They started me on tasigna 16 days ago, and I think I had a small stroke two days ago because of it. So the doc said to go off it for a week and start again. Wonder what will happen when I go on it again? I'm pretty scared to be honest, and not much makes me afraid!!! I have an unusual propensity to bleed in my brain. This is not a usual problem for most folks, just me. I'm waiting for my bcr/abl test results also to have a benchmark for beginning again on meds. I am really at a loss about what to do about going back on! Grandkids are here also for the yearly visit and I have no energy whatsoever. Anybody have any suggestions? Blessings, Susan F. Zimmerman -----Original Message----- From: margood18 <margoo...@aol.com> To: CMLHope <CMLHope@googlegroups.com> Sent: Thu, Jul 11, 2013 12:36 pm Subject: [CMLHope] Just wanted to drop in and say to Millie that I've been thinking about you and hoping you are doing OK. When do your results on the biopsy come in? I have you, and all of the group, in my daily thoughts and prayers. I'm waiting for my BCR-ABL and FISH results which should be in any day now. If they are as good as they have been (MMR but still detected, although at very low levels), my onc is going to try cutting my Gleevec from 600 to 400. I am having terrible issues with memory loss and, in fact, having a brain MRI tomorrow. 3 years ago I had a TIA which no doctor wanted to attribute to Gleevec. It didn't leave any permanent damage but the Gleevec fog is so much worse. So now they will be able to compare my brain with what it looked like in 2010 to see if I've lost brain cells. My onc now knows that Gleevec can cause severe memory problems so he is very proactive about it. Take good care, you Millie, and all of the CML Warriors. Thanks for your ongoing loving support. By the way, should we start a phone club like Zavie used to do? Marcie -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
