This is good news that you are reacting positively John. I am hopeful they can get the dosage and blood count side effects under control with time. That you responded is a step in the right direction!!!! We are thinking of you.. BethKeep us posted!!!
-----Original Message----- From: John Barrons <[email protected]> To: CML Hope <[email protected]> Sent: Tue, Aug 13, 2013 10:24 am Subject: [CMLHope] Ponatinib Thanks for your responses. I went on it last December and dosed at 45 mgs. It certainly brought my hemoglobin, platelets and white blood cells down quickly so they had to vary the drug from 45 to 30 and then to15 mgs per day. Right now I have been off the drug for three weeks as my counts are very low. I will see on this Friday whether they have come up again. Ponatinib is the only one that I have positively reacted to. I am not 100 percent phillies any more. I did not have to go into hospital for the treatment. John Sent from my iPad -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out.
