Thanks Maggy for answering.  I'd like to hear more about how you are doing on 
this drug.  Not sure which one they will put me on after determining why I am 
having brain bleed tendencies.  
Was on gleevec for 2 yrs 3 mos, on nothing now for six years because of brain 
bleeds.  Numbers were going up upon last check, tried 15 days of tasigna and 
had an indication again of brain bleeding.  Sept. 4th going to Northwestern 
Univ. again to try to determine the cause.


Blessings,

Susan F. Zimmerman



-----Original Message-----
From: [email protected] <[email protected]>
To: cmlhope <[email protected]>
Sent: Tue, Aug 13, 2013 2:36 am
Subject: Re: [CMLHope] Ponatinib






 
Yes, been on this drug since around first week of June.  45 mg I believe.  Was 
hospitalized for almost two months while the drug did its thing.     




From: John Barrons <[email protected]>
To: CML Hope <[email protected]> 
Sent: Monday, August 12, 2013 10:53 AM
Subject: [CMLHope] Ponatinib


I have had CML for almost 14 years now. I failed gleevec and sprycel and am now 
on ponatinib. Is there anybody in this group who is on this drug? 

Sent from my iPad

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