Hi everyone!!!! I hope that all is well with everyone of you!!!!! Haven't noticed any activity in a while and that worries me!!!!
Maria On Sun, Sep 28, 2014 at 6:18 AM, <[email protected]> wrote: > [email protected] > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!forum/cmlhope/topics> > Google > Groups > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview> > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview> > Topic digest > View all topics > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!forum/cmlhope/topics> > > - jeanies blood results and Marty <#148bbcef7677c233_group_thread_0> > - 1 Update > > jeanies blood results and Marty > <http://groups.google.com/group/cmlhope/t/9c8e85c9ec5718c8?utm_source=digest&utm_medium=email> > Susan Zimmerman <[email protected]>: Sep 27 11:38PM -0400 > > This is so helpful, if I can figure it out, lol.... > > > Always wondered what ANC was...... > > > Susan > > > > > -----Original Message----- > From: 'Skip Duffie' via CMLHope <[email protected]> > To: cmlhope <[email protected]> > Sent: Sat, Sep 27, 2014 4:44 pm > Subject: Re: [CMLHope] jeanies blood results and Marty > > > > > > > > > http://www.mdcalc.com/absolute-neutrophil-count-anc/ > Hi Jeanie and all. Just reading your report, as it seem different to our > reports here in NS... I will try to explain ANC as best as I can. First if > you look to the right of my actual counts, you will see what the count > should be. next you will not find ANC, this count is a combination of white > cells and neutrophils, These counts do not appear on the copy of your > results. To find this count (ask your nurse or lab tech) see mine from this > Fri. > the formula is ANC = through the years > I found a way not exact but just take %of neutrophils and multiply by > white count,what this indicates is how immune compromised your are. In fact > I think its the most important count you can get. Neutrophils indicated how > your system is retaining bug fighting capabilities and they call it ANC I > still figure mine out twice week. If I have all the information like % > bands and Segments as in the formula above will use it. but most times I > just use my method. I hope I did not confuse you but if your neutrophils > are up (see my report) that's good but if low avoid crowded spaces ( I miss > church) > > > > > > > > > > > > > On Friday, September 26, 2014 10:03 PM, Marty Gartenberg <[email protected]> > wrote: > > > > > > Hi Jeanie, > > > Pain especially severe pain is the worst thing that someone could ever go > through. I have been through a lot of severe pain in my life. Having my > spleen surgically removed was really bad but then I had some very severe > gout attacks, but even worse was two bouts with the shingles. However the > absolutly worst pain in my life were the terrible mouth sores when I went > through my bone marrow transplant. It hurt so badly that I was put on a > morphine drip that I was able to control with a button. The only thing that > it did was to make me hullicinate and throw up. It got so bad that I > removed the morphine tube and went on with the pain. I just decided to put > my mind in a different place. The transplant nurse gowned up and came into > my bubble and held my hand in her gloved hand and whispered through her > mask three words into my ear. I always remembered those three words to this > day. She said "It's only temporary" and even though I suffered greatly I > would say those words over and over again. They helped me deal with the > pain, but it still hurt and I wouldn't let my mind soak it in. > > > 18's, > > > Marty > > > > On Fri, Sep 26, 2014 at 9:50 AM, ICANDOALLTTC via CMLHope < > [email protected]> wrote: > > > Hi Marty and so glad you are home; I pray that everything goes well. > As we walk through this life, it seems pain is very much a part of it. I > try to cope, and I remember Millie telling me that she would cope with the > pain as well as she could. My sister has knee pain and I would tell Millie > that she woke up each morning in pain; so I told her we could all join > together in a prayer in the morning as we all woke up with pain. > > Coping with pain is hard because you don't know what is safe to take for > the pain. As Sprycel is already a blood thinner, and most pain pills are > blood thinners, you have to be careful that you don't get your blood too > thin. I believe Millie had that problem, and she finally got a machine that > would tell her how thin her blood was. However, as my platelets are high, I > probably don't need to worry about the blood being too thin. Those with low > platelets would have to watch it carefully. > > I was taking Tramadol for pain and it helped some. I learned recently that > it has been put on controlled drug list. My doctor never told me this drug > could be addictive, so I took it at least once a day. Now I find out that > it is addictive, and that you can't just go off of it. You have to cut down > gradually as it affects the brain. If anyone is on this drug, google it and > it will tell you all about it. > > I had my visit at Moffit yesterday; it was good news. My platelets are > back in the normal range but still higher than I would like at 362k/ul. WBC > were 7.75 k/ul and a little higher than I would like. My onc however was > happy with them and said I could come back in 3 months. I told him about my > jaw pain, and he said to have the dentist x-ray my jaw, so I will have that > done soon; if the jaw is ok then the onc might want to do other test. The > pain in my jaw is much better, but not all the way well. > > ANC was high; anyone know anything about this? > Thanks Blessings, > Jeanie<3 > > Here is a copy of my blood results for those that are interested: > > > > > > > > In a message dated 9/23/2014 7:54:08 P.M. Eastern Daylight Time, > [email protected] writes: > Hi Jeannie and everyone else. > > I had my surgery today and just got back home. Hopefully everything > went well but I won't know for sure until I get my dialysis tomorrow. > > I am still a bit woozy and starting to have more pain right now so I > will continue this some other time. > > Jeannie, I just want to say how badly I feel that you have such pain. > I hope that it gets better very soon. > > You see that this CML site is something that makes all of us really > care for and about each other. We are actually just like a big loving > family. Sometimes people that haven't experienced what we go through > really have no idea of what we do go through. > > 18's to each and every one of us. Today starts the Jewish New Year and > as such we are all hopefully written into the book of life. No matter > who you may be no matter what your religious beliefs are I truly wish > all of you a healthy life. > > I would personally like to thank everyone for all of their good > thoughts and prayers that you are saying for me and to everyone else. > > 18's > > Marty > > > To unsubscribe from this group and stop receiving emails from it, send an > > email to mailto:cmlhope%[email protected]. > > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com/ > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to mailto:cmlhope%[email protected]. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com/ > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com/ > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > > > > > > > > > > > > > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > Back to top <#148bbcef7677c233_digest_top> > You received this digest because you're subscribed to updates for this > group. You can change your settings on the group membership page > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!forum/cmlhope/join> > . > To unsubscribe from this group and stop receiving emails from it send an > email to [email protected]. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
