Hi Marty, How are you since your last surgery? Here's hoping that the New Year will bring abundant blessings to all, but especially to you, dear Marty, for a transplant to come your way very shortly.
Marcie Sent from my iPad > On Oct 4, 2014, at 8:10 PM, Marty Gartenberg <[email protected]> wrote: > > Hi Maria, > > We are still around so you don't have to worry. > > Today is my New Year and I prayed for everyone to have a happy and healthy > New Year. May any afflictions that anyone has become healed, and by the grace > of GOD that will happen. I know in my heart that there is a cure coming for > CML. > > 18,s > > Marty > >> On Sat, Oct 4, 2014 at 2:02 PM, Maria Cashion <[email protected]> wrote: >> Hi everyone!!!! >> I hope that all is well with everyone of you!!!!! Haven't noticed any >> activity in a while and that worries me!!!! >> >> Maria >> >>> On Sun, Sep 28, 2014 at 6:18 AM, <[email protected]> wrote: >>> >>> [email protected] Google Groups >>> Topic digest >>> View all topics >>> jeanies blood results and Marty - 1 Update >>> jeanies blood results and Marty >>> Susan Zimmerman <[email protected]>: Sep 27 11:38PM -0400 >>> >>> This is so helpful, if I can figure it out, lol.... >>> >>> >>> Always wondered what ANC was...... >>> >>> >>> Susan >>> >>> >>> >>> >>> -----Original Message----- >>> From: 'Skip Duffie' via CMLHope <[email protected]> >>> To: cmlhope <[email protected]> >>> Sent: Sat, Sep 27, 2014 4:44 pm >>> Subject: Re: [CMLHope] jeanies blood results and Marty >>> >>> >>> >>> >>> >>> >>> >>> >>> http://www.mdcalc.com/absolute-neutrophil-count-anc/ >>> Hi Jeanie and all. Just reading your report, as it seem different to our >>> reports here in NS... I will try to explain ANC as best as I can. First if >>> you look to the right of my actual counts, you will see what the count >>> should be. next you will not find ANC, this count is a combination of white >>> cells and neutrophils, These counts do not appear on the copy of your >>> results. To find this count (ask your nurse or lab tech) see mine from this >>> Fri. >>> the formula is ANC = through the years >>> I found a way not exact but just take %of neutrophils and multiply by white >>> count,what this indicates is how immune compromised your are. In fact I >>> think its the most important count you can get. Neutrophils indicated how >>> your system is retaining bug fighting capabilities and they call it ANC I >>> still figure mine out twice week. If I have all the information like % >>> bands and Segments as in the formula above will use it. but most times I >>> just use my method. I hope I did not confuse you but if your neutrophils >>> are up (see my report) that's good but if low avoid crowded spaces ( I miss >>> church) >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> On Friday, September 26, 2014 10:03 PM, Marty Gartenberg <[email protected]> >>> wrote: >>> >>> >>> >>> >>> >>> Hi Jeanie, >>> >>> >>> Pain especially severe pain is the worst thing that someone could ever go >>> through. I have been through a lot of severe pain in my life. Having my >>> spleen surgically removed was really bad but then I had some very severe >>> gout attacks, but even worse was two bouts with the shingles. However the >>> absolutly worst pain in my life were the terrible mouth sores when I went >>> through my bone marrow transplant. It hurt so badly that I was put on a >>> morphine drip that I was able to control with a button. The only thing that >>> it did was to make me hullicinate and throw up. It got so bad that I >>> removed the morphine tube and went on with the pain. I just decided to put >>> my mind in a different place. The transplant nurse gowned up and came into >>> my bubble and held my hand in her gloved hand and whispered through her >>> mask three words into my ear. I always remembered those three words to this >>> day. She said "It's only temporary" and even though I suffered greatly I >>> would say those words over and over again. They helped me deal with the >>> pain, but it still hurt and I wouldn't let my mind soak it in. >>> >>> >>> 18's, >>> >>> >>> Marty >>> >>> >>> >>> On Fri, Sep 26, 2014 at 9:50 AM, ICANDOALLTTC via CMLHope >>> <[email protected]> wrote: >>> >>> >>> Hi Marty and so glad you are home; I pray that everything goes well. >>> As we walk through this life, it seems pain is very much a part of it. I >>> try to cope, and I remember Millie telling me that she would cope with the >>> pain as well as she could. My sister has knee pain and I would tell Millie >>> that she woke up each morning in pain; so I told her we could all join >>> together in a prayer in the morning as we all woke up with pain. >>> >>> Coping with pain is hard because you don't know what is safe to take for >>> the pain. As Sprycel is already a blood thinner, and most pain pills are >>> blood thinners, you have to be careful that you don't get your blood too >>> thin. I believe Millie had that problem, and she finally got a machine that >>> would tell her how thin her blood was. However, as my platelets are high, I >>> probably don't need to worry about the blood being too thin. Those with low >>> platelets would have to watch it carefully. >>> >>> I was taking Tramadol for pain and it helped some. I learned recently that >>> it has been put on controlled drug list. My doctor never told me this drug >>> could be addictive, so I took it at least once a day. Now I find out that >>> it is addictive, and that you can't just go off of it. You have to cut down >>> gradually as it affects the brain. If anyone is on this drug, google it and >>> it will tell you all about it. >>> >>> I had my visit at Moffit yesterday; it was good news. My platelets are back >>> in the normal range but still higher than I would like at 362k/ul. WBC were >>> 7.75 k/ul and a little higher than I would like. My onc however was happy >>> with them and said I could come back in 3 months. I told him about my jaw >>> pain, and he said to have the dentist x-ray my jaw, so I will have that >>> done soon; if the jaw is ok then the onc might want to do other test. The >>> pain in my jaw is much better, but not all the way well. >>> >>> ANC was high; anyone know anything about this? >>> Thanks Blessings, >>> Jeanie<3 >>> >>> Here is a copy of my blood results for those that are interested: >>> >>> >>> >>> >>> >>> >>> >>> In a message dated 9/23/2014 7:54:08 P.M. Eastern Daylight Time, >>> [email protected] writes: >>> Hi Jeannie and everyone else. >>> >>> I had my surgery today and just got back home. Hopefully everything >>> went well but I won't know for sure until I get my dialysis tomorrow. >>> >>> I am still a bit woozy and starting to have more pain right now so I >>> will continue this some other time. >>> >>> Jeannie, I just want to say how badly I feel that you have such pain. >>> I hope that it gets better very soon. >>> >>> You see that this CML site is something that makes all of us really >>> care for and about each other. We are actually just like a big loving >>> family. Sometimes people that haven't experienced what we go through >>> really have no idea of what we do go through. >>> >>> 18's to each and every one of us. Today starts the Jewish New Year and >>> as such we are all hopefully written into the book of life. No matter >>> who you may be no matter what your religious beliefs are I truly wish >>> all of you a healthy life. >>> >>> I would personally like to thank everyone for all of their good >>> thoughts and prayers that you are saying for me and to everyone else. >>> >>> 18's >>> >>> Marty >>> >>> > To unsubscribe from this group and stop receiving emails from it, send an >>> > email to mailto:cmlhope%[email protected]. >>> > For more options, visit https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com/ >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to mailto:cmlhope%[email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com/ >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> >>> >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com/ >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> Back to top >>> You received this digest because you're subscribed to updates for this >>> group. You can change your settings on the group membership page. >>> To unsubscribe from this group and stop receiving emails from it send an >>> email to [email protected]. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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