Hi Gang, did any of you folks watch 60 min. last night. It was about the cost of cancer drugs and Gleevec was on the list of high cost. Some people can't afford to pay the co-pay so their not getting the drug. Some people are taking haft the amount that their suppose to take to same on cost. It's all about money. In my mind you can't tell me they don't have a cure for CML they would loose so much money plus all of the research, etc. Novartis has made billions of dollars since the begining in May of 2001. I would say they have received their return of investment spent on research by now. I hope all is well with everyone out their. Greenie In a message dated 10/5/2014 6:44:32 P.M. Eastern Daylight Time, [email protected] writes:
Hi Marcie, We all seem to have our own afflictions so it isn't only me but every one of us that needs prayers for a healthy new year no matter what religion we may be. I so much appreciate your prayers for me to find myself transplanted with a kidney soon. Hopefully... 18's, Marty On Sat, Oct 4, 2014 at 9:00 PM, 'Marcie Goodman' via CMLHope <[email protected]_ (mailto:[email protected]) > wrote: Hi Marty, How are you since your last surgery? Here's hoping that the New Year will bring abundant blessings to all, but especially to you, dear Marty, for a transplant to come your way very shortly. Marcie Sent from my iPad On Oct 4, 2014, at 8:10 PM, Marty Gartenberg <[email protected]_ (mailto:[email protected]) > wrote: Hi Maria, We are still around so you don't have to worry. Today is my New Year and I prayed for everyone to have a happy and healthy New Year. May any afflictions that anyone has become healed, and by the grace of GOD that will happen. I know in my heart that there is a cure coming for CML. 18,s Marty On Sat, Oct 4, 2014 at 2:02 PM, Maria Cashion <[email protected]_ (mailto:[email protected]) > wrote: Hi everyone!!!! I hope that all is well with everyone of you!!!!! Haven't noticed any activity in a while and that worries me!!!! Maria On Sun, Sep 28, 2014 at 6:18 AM, <[email protected]_ (mailto:[email protected]) > wrote: [email protected]_ (https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!forum/cmlhope/topics) _Google Groups_ (https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview) (https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overvie w) Topic digest _View all topics_ (https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!forum/cmlhope/topics) * _jeanies blood results and Marty_ (mip://15390868/default.html#148ddd75b993fda1_148dc53640c4fa63_148bbcef7677c233_group_thread_0) - 1 Update _jeanies blood results and Marty _ (http://groups.google.com/group/cmlhope/t/9c8e85c9ec5718c8?utm_source=digest&utm_medium=email) Susan Zimmerman <[email protected]_ (mailto:[email protected]) >: Sep 27 11:38PM -0400 This is so helpful, if I can figure it out, lol.... Always wondered what ANC was...... Susan -----Original Message----- From: 'Skip Duffie' via CMLHope <[email protected]_ (mailto:[email protected]) > To: cmlhope <[email protected]_ (mailto:[email protected]) > Sent: Sat, Sep 27, 2014 4:44 pm Subject: Re: [CMLHope] jeanies blood results and Marty http://www.mdcalc.com/absolute-neutrophil-count-anc/ Hi Jeanie and all. Just reading your report, as it seem different to our reports here in NS... I will try to explain ANC as best as I can. First if you look to the right of my actual counts, you will see what the count should be. next you will not find ANC, this count is a combination of white cells and neutrophils, These counts do not appear on the copy of your results. To find this count (ask your nurse or lab tech) see mine from this Fri. the formula is ANC = through the years I found a way not exact but just take %of neutrophils and multiply by white count,what this indicates is how immune compromised your are. In fact I think its the most important count you can get. Neutrophils indicated how your system is retaining bug fighting capabilities and they call it ANC I still figure mine out twice week. If I have all the information like % bands and Segments as in the formula above will use it. but most times I just use my method. I hope I did not confuse you but if your neutrophils are up (see my report) that's good but if low avoid crowded spaces ( I miss church) On Friday, September 26, 2014 10:03 PM, Marty Gartenberg <[email protected]_ (mailto:[email protected]) > wrote: Hi Jeanie, Pain especially severe pain is the worst thing that someone could ever go through. I have been through a lot of severe pain in my life. Having my spleen surgically removed was really bad but then I had some very severe gout attacks, but even worse was two bouts with the shingles. However the absolutly worst pain in my life were the terrible mouth sores when I went through my bone marrow transplant. It hurt so badly that I was put on a morphine drip that I was able to control with a button. The only thing that it did was to make me hullicinate and throw up. It got so bad that I removed the morphine tube and went on with the pain. I just decided to put my mind in a different place. The transplant nurse gowned up and came into my bubble and held my hand in her gloved hand and whispered through her mask three words into my ear. I always remembered those three words to this day. She said "It's only temporary" and even though I suffered greatly I would say those words over and over again. They helped me deal with the pain, but it still hurt and I wouldn't let my mind soak it in. 18's, Marty On Fri, Sep 26, 2014 at 9:50 AM, ICANDOALLTTC via CMLHope <[email protected]_ (mailto:[email protected]) > wrote: Hi Marty and so glad you are home; I pray that everything goes well. As we walk through this life, it seems pain is very much a part of it. I try to cope, and I remember Millie telling me that she would cope with the pain as well as she could. My sister has knee pain and I would tell Millie that she woke up each morning in pain; so I told her we could all join together in a prayer in the morning as we all woke up with pain. Coping with pain is hard because you don't know what is safe to take for the pain. As Sprycel is already a blood thinner, and most pain pills are blood thinners, you have to be careful that you don't get your blood too thin. I believe Millie had that problem, and she finally got a machine that would tell her how thin her blood was. However, as my platelets are high, I probably don't need to worry about the blood being too thin. Those with low platelets would have to watch it carefully. I was taking Tramadol for pain and it helped some. I learned recently that it has been put on controlled drug list. My doctor never told me this drug could be addictive, so I took it at least once a day. Now I find out that it is addictive, and that you can't just go off of it. You have to cut down gradually as it affects the brain. If anyone is on this drug, google it and it will tell you all about it. I had my visit at Moffit yesterday; it was good news. My platelets are back in the normal range but still higher than I would like at 362k/ul. WBC were 7.75 k/ul and a little higher than I would like. My onc however was happy with them and said I could come back in 3 months. I told him about my jaw pain, and he said to have the dentist x-ray my jaw, so I will have that done soon; if the jaw is ok then the onc might want to do other test. The pain in my jaw is much better, but not all the way well. ANC was high; anyone know anything about this? Thanks Blessings, Jeanie<3 Here is a copy of my blood results for those that are interested: In a message dated 9/23/2014 7:54:08 P.M. Eastern Daylight Time, [email protected]_ (mailto:[email protected]) writes: Hi Jeannie and everyone else. I had my surgery today and just got back home. Hopefully everything went well but I won't know for sure until I get my dialysis tomorrow. I am still a bit woozy and starting to have more pain right now so I will continue this some other time. Jeannie, I just want to say how badly I feel that you have such pain. I hope that it gets better very soon. You see that this CML site is something that makes all of us really care for and about each other. We are actually just like a big loving family. Sometimes people that haven't experienced what we go through really have no idea of what we do go through. 18's to each and every one of us. Today starts the Jewish New Year and as such we are all hopefully written into the book of life. No matter who you may be no matter what your religious beliefs are I truly wish all of you a healthy life. I would personally like to thank everyone for all of their good thoughts and prayers that you are saying for me and to everyone else. 18's Marty > To unsubscribe from this group and stop receiving emails from it, send an > email to mailto:_cmlhope%[email protected]_ (mailto:cmlhope%[email protected]) . > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com/ ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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